University of Oxford, Uehiro Centre for Practical Ethics, Wellcome Centre for Ethics and Humanities, Faculty of Philosophy, United Kingdom of Great Britain and Northern Ireland.
Bioethics. 2020 Sep;34(7):712-718. doi: 10.1111/bioe.12711. Epub 2020 Feb 14.
This paper argues that assessing personal responsibility in healthcare settings for the allocation of medical resources would be too privacy-invasive to be morally justifiable. In addition to being an inappropriate and moralizing intrusion into the private lives of patients, it would put patients' sensitive data at risk, making data subjects vulnerable to a variety of privacy-related harms. Even though we allow privacy-invasive investigations to take place in legal trials, the justice and healthcare systems are not analogous. The duty of doctors and healthcare professionals is to help patients as best they can-not to judge them. Patients should not be forced into giving up any more personal information than what is strictly necessary to receive an adequate treatment, and their medical data should only be used for appropriate purposes. Medical ethics codes should reflect these data rights. When a doctor asks personal questions that are irrelevant to diagnose or treat a patient, the appropriate response from the patient is: 'none of your business'.
本文认为，在医疗保健环境中评估个人在医疗资源分配方面的责任，将对隐私造成过度侵犯，在道德上是站不住脚的。这种做法不仅不恰当地侵犯了患者的私人生活，而且还将使患者的敏感数据面临风险，使数据主体容易受到各种与隐私相关的伤害。尽管我们允许在法律审判中进行侵犯隐私的调查，但司法和医疗保健系统并不相似。医生和医疗保健专业人员的职责是尽力帮助患者，而不是评判他们。患者不应该被迫提供超出获得充分治疗所需的任何个人信息，并且他们的医疗数据只能用于适当的目的。医疗伦理准则应该反映这些数据权利。当医生询问与诊断或治疗患者无关的个人问题时，患者的恰当回应是：“这不关你的事”。
