Time from diagnosis to institutionalization and death in people with dementia.

INTRODUCTION

Reliable estimates of time from diagnosis until institutionalization and death in people with dementia from routine nationally representative databases are lacking.

METHODS

We selected 9230 people with dementia and 24,624 matched controls from family physicians' electronic records linked with national administrative databases to analyze time until institutionalization and death and associated factors.

RESULTS

Median time from recorded diagnosis until institutionalization and until death for people with dementia was 3.9 and 5.0 years, respectively, which was considerably shorter than for controls. Once institutionalized, median time to death was longer for persons with dementia (2.5 years) than for controls (1.2 years). Older age and receiving home care were the strongest predictors of shorter time until institutionalization and death in people with dementia. Gender, cohabitation, migration status, frailty, polypharmacy, and dementia medication were other significant factors.

DISCUSSION

The estimates could help to inform patients, their families, and policymakers about probable trajectories.