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为澳大利亚中部残疾原住民成年人提供服务所面临的环境和系统性挑战。

Environmental and systemic challenges to delivering services for Aboriginal adults with a disability in Central Australia.

作者信息

Gilroy John, Dew Angela, Barton Rebecca, Ryall Lee, Lincoln Michelle, Taylor Kerry, Jensen Heather, Flood Victoria, McRae Kim

机构信息

Sydney School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.

Faculty of Health Sciences, Deakin University, Melbourne, Australia.

出版信息

Disabil Rehabil. 2021 Oct;43(20):2919-2929. doi: 10.1080/09638288.2020.1725654. Epub 2020 Feb 23.

DOI:10.1080/09638288.2020.1725654
PMID:32088974
Abstract

PURPOSE

This two-year (2016-2018) study aimed to identify what a good life is for Aboriginal people with disability in remote Central Australia and how service providers can support them to achieve a good life. This paper presents the findings that relate to barriers to delivering services for Aboriginal people with disability.

METHODS

In-depth interviews and focus groups were held with Aboriginal people with disability and their carers aged at least 18 years from the Ngaanyatjarra Pitjantjatjara Yankunytjatjara (NPY) Lands and community organisations providing services there. The data were analysed using thematic analysis.

RESULTS

There were 109 participants, of whom 47 were workers in service provider organisations and 62 were Aboriginal people. From the data, barriers to delivering services to support Aboriginal people to live a good life and solutions to overcome the barriers, were identified and described under the headings of environmental barriers and systemic issues.

CONCLUSIONS

We discuss the policy implications of these findings with regard to addressing Indigenous disadvantage and how governments, service providers, communities, and Aboriginal people with disability and their families can work in partnership to address these barriers.Implications for RehabilitationIndigenous people with disability living in remote and very remote communities experience significant access and equity barriers to culturally responsive services that enable them to live a socially and culturally engaged life.Localised government and service provider disability policy approaches in Indigenous communities need to focus on both environmental and systemic issues.Greater investment in local remote communities is required to build the capacity of Indigenous families to support Aboriginal people with a disability to live a culturally and socially included life.

摘要

目的

这项为期两年(2016 - 2018年)的研究旨在确定对于澳大利亚中部偏远地区的残疾原住民而言,美好的生活是什么样的,以及服务提供者如何支持他们实现美好的生活。本文呈现了与为残疾原住民提供服务的障碍相关的研究结果。

方法

对来自恩亚尼亚贾拉-皮詹贾拉-扬昆亚贾拉(NPY)地区、年龄在18岁及以上的残疾原住民及其照顾者,以及在当地提供服务的社区组织进行了深入访谈和焦点小组讨论。采用主题分析法对数据进行分析。

结果

共有109名参与者,其中47名是服务提供机构的工作人员,62名是原住民。从数据中,在环境障碍和系统性问题的标题下,确定并描述了为支持原住民过上美好生活而提供服务的障碍以及克服这些障碍的解决方案。

结论

我们讨论了这些研究结果在解决原住民劣势方面的政策含义,以及政府、服务提供者、社区、残疾原住民及其家庭如何能够合作解决这些障碍。对康复的启示生活在偏远和极偏远社区的残疾原住民在获得具有文化适应性的服务方面面临重大的获取和公平障碍,这些服务能使他们过上社会和文化参与度高的生活。原住民社区的地方政府和服务提供者的残疾政策方法需要关注环境和系统性问题。需要对当地偏远社区进行更多投资,以增强原住民家庭支持残疾原住民过上文化和社会包容生活的能力。

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