The Michael J. Fox Foundation for Parkinson's disease Research, Research Partnerships, 111 W 33rd St, New York, NY, 10019, USA.
Laboratory for Neuro Imaging, Mark and Mary Stevens Neuroimaging and Informatics Institute, Ken School of Medicine of USC, University of Southern California, 2025 Zonal Avenue, Los Angeles, CA, 90033, USA.
Sci Data. 2020 Feb 24;7(1):67. doi: 10.1038/s41597-020-0401-2.
Fox Insight is an online, longitudinal health study of people with and without Parkinson's disease with targeted enrollment set to at least 125,000 individuals. Fox Insight data is a rich data set facilitating discovery, validation, and reproducibility in Parkinson's disease research. The dataset is generated through routine longitudinal assessments (health and medical questionnaires evaluated at regular cycles), one-time questionnaires about environmental exposure and healthcare preferences, and genetic data collection. Qualified Researchers can explore, analyze, and download patient-reported outcomes (PROs) data and Parkinson's disease- related genetic variants at https://foxden.michaeljfox.org. The full Fox Insight genetic data set, including approximately 600,000 single nucleotide polymorphisms (SNPs), can be requested separately with institutional review and are described outside of this data descriptor.
Fox Insight 是一项针对帕金森病患者和非患者的在线纵向健康研究，目标入组人数至少为 125000 人。Fox Insight 数据是一个丰富的数据集，有助于帕金森病研究的发现、验证和重现。该数据集通过常规纵向评估（定期评估健康和医疗问卷）、一次性关于环境暴露和医疗保健偏好的问卷以及遗传数据收集生成。合格的研究人员可以在 https://foxden.michaeljfox.org 上探索、分析和下载患者报告的结果（PROs）数据和与帕金森病相关的遗传变异。完整的 Fox Insight 遗传数据集，包括大约 600000 个单核苷酸多态性（SNP），可以在获得机构审查后单独请求，并且不在本数据描述符中描述。
