PD Avengers (Global Alliance to End Parkinson's Disease), Vancouver, BC, Canada.
Russell Sage College, Troy, NY, USA.
J Parkinsons Dis. 2023;13(3):329-332. doi: 10.3233/JPD-230017.
There is a fundamental gap in knowledge in how Parkinson's disease manifests and affects women throughout their hormonal life cycle, resulting in unmet needs and adversely impacting women's quality of life. A set of questionnaires was developed and deployed through Fox Insight (open access) to address these issues by gathering data. This is the data from the first survey. The data from the questions regarding self-image were striking. 61% of women report that their Parkinson's disease negatively impacts their self-image. Here we explore the negative impact of Parkinson's disease on women to begin to fill the gaps in knowledge.
帕金森病在女性整个激素生命周期中的表现和影响方式,存在着知识上的根本差距,导致女性的需求未得到满足,并对其生活质量产生不利影响。为了解决这些问题,我们通过 Fox Insight(开放获取)开发并部署了一组问卷来收集数据。这是第一次调查的数据。关于自我形象的问题的数据引人注目。61%的女性报告说,帕金森病对她们的自我形象产生了负面影响。在这里,我们探讨帕金森病对女性的负面影响,以开始填补知识空白。