McIntyre Amanda, Marrocco Stephanie L, McRae Samantha A, Sleeth Lindsay, Hitzig Sander, Jaglal Susan, Linassi Gary, Munce Sarah, Wolfe Dalton L
Lawson Health Research Institute, Parkwood Institute, Ontario, Canada.
Epidemiology, Western University, Ontario, Canada.
Top Spinal Cord Inj Rehabil. 2020 Winter;26(1):36-63. doi: 10.1310/sci2601-36.
To conduct a scoping review to identify what components of self-management are embedded in self-management interventions for spinal cord injury (SCI). In accordance with the approach and stages outlined by Arksey and O'Malley (2005), a comprehensive literature search was conducted using five databases. Study characteristics were extracted from included articles, and intervention descriptions were coded using Practical Reviews in Self-Management Support (PRISMS) (Pearce et al, 2016), Barlow et al (2002), and Lorig and Holman's (2003) taxonomy. A total of 112 studies were included representing 102 unique self-management programs. The majority of the programs took an individual approach (52.0%) as opposed to a group (27.4%) or mixed approach (17.6%). While most of the programs covered general information, some provided specific symptom management. Peers were the most common tutor delivering the program material. The most common Barlow components included symptom management ( = 44; 43.1%), information about condition/treatment ( = 34; 33.3%), and coping ( = 33; 32.4%). The most common PRISMS components were information about condition and management ( = 85; 83.3%), training/rehearsal for psychological strategies ( = 52; 51.0%), and lifestyle advice and support ( = 52; 51.0%). The most common Lorig components were taking action ( = 62; 60.8%), resource utilization ( = 57; 55.9%), and self-tailoring ( = 55; 53.9%). Applying self-management concepts to complex conditions such as SCI is only in the earliest stages of development. Despite having studied the topic from a broad perspective, this review reflects an ongoing program of research that links to an initiative to continue refining and testing self-management interventions in SCI.
开展一项范围综述，以确定脊髓损伤（SCI）自我管理干预措施中包含哪些自我管理的组成部分。按照阿克西和奥马利（2005年）概述的方法和阶段，使用五个数据库进行了全面的文献检索。从纳入的文章中提取研究特征，并使用自我管理支持实践综述（PRISMS）（皮尔斯等人，2016年）、巴洛等人（2002年）以及洛里格和霍尔曼（2003年）的分类法对干预描述进行编码。总共纳入了112项研究，代表102个独特的自我管理项目。大多数项目采用个体方法（52.0%），而非小组方法（27.4%）或混合方法（17.6%）。虽然大多数项目涵盖一般信息，但有些项目提供特定的症状管理。同伴是提供项目材料最常见的指导者。最常见的巴洛组成部分包括症状管理（=44；43.1%）、病情/治疗信息（=34；33.3%）和应对（=33；32.4%）。最常见的PRISMS组成部分是病情和管理信息（=85；83.3%）、心理策略的培训/演练（=52；51.0%）以及生活方式建议和支持（=52；51.0%）。将自我管理概念应用于SCI等复杂病症仅处于发展的早期阶段。尽管已从广泛的角度研究了该主题，但本综述反映了一项正在进行的研究计划，该计划与一项继续完善和测试SCI自我管理干预措施的倡议相关。
