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医学协助死亡中的艰难处境:一项关于法定协助死亡背景下护理实践的定性研究

The rocks and hard places of MAiD: a qualitative study of nursing practice in the context of legislated assisted death.

作者信息

Pesut Barbara, Thorne Sally, Schiller Catharine J, Greig Madeleine, Roussel Josette

机构信息

1Canada Research Chair in Health, Ethics, and Diversity, University of British Columbia Okanagan, 1147 Research Road, Okanagan, Kelowna, BC V1V 1V7 Canada.

2University of British Columbia, T201-2211 Wesbrook Mall, Vancouver, BC V6T 2B5 Canada.

出版信息

BMC Nurs. 2020 Feb 17;19:12. doi: 10.1186/s12912-020-0404-5. eCollection 2020.

Abstract

BACKGROUND

Medical Assistance in Dying (MAiD) was legalized in Canada in June, 2016. The Canadian government's decision to legislate assisted dying, an approach that requires a high degree of obligation, precision, and delegation, has resulted in unique challenges for health care and for nursing practice. The purpose of this study was to better understand the implications of a legislated approach to assisted death for nurses' experiences and nursing practice.

METHODS

The study used a qualitative approach guided by Interpretive Description. Semi-structured interviews were conducted with 59 registered nurses and nurse practitioners. Interviews were audio-recorded, transcribed, and managed using qualitative analysis software. Analysis followed a procedure of data immersion, open coding, constant comparative analysis, and the construction of a thematic and interpretive account.

RESULTS

Nurses in this study described great variability in how MAiD had been enacted in their work context and the practice supports available to guide their practice. The development of systems to support MAiD, or lack thereof, was largely driven by persons in influential leadership positions. Workplaces that supported a range of nurses' moral responses to MAiD were most effective in supporting nurses' well-being during this impactful change in practice. Participants cited the importance of teamwork in providing high quality MAiD-related care; although, many worked without the benefit of a team. Nursing work related to MAiD was highly complex, largely because of the need for patient-centered care in systems that were not always organized to support such care. In the absence of adequate practice supports, some nurses were choosing to limit their involvement in MAiD.

CONCLUSIONS

Data obtained in this study suggested that some workplace contexts still lack the necessary supports for nurses to confidently meet the precision required of a legislated approach to MAiD. Without accessible palliative care, sufficient providers, a supportive team, practice supports, and a context that allowed nurses to have a range of responses to MAiD, nurses felt they were legally and morally at risk. Nurses seeking to provide the compassionate care consistent with such a momentous moment in patients' lives, without suitable supports, find themselves caught between the proverbial rock and hard place.

摘要

背景

2016年6月,加拿大将医疗协助死亡(MAiD)合法化。加拿大政府立法规定协助死亡的决定,这一做法需要高度的义务、精准度和授权,给医疗保健和护理实践带来了独特的挑战。本研究的目的是更好地理解立法规定的协助死亡方式对护士的经历和护理实践的影响。

方法

本研究采用以诠释性描述为指导的定性方法。对59名注册护士和执业护士进行了半结构化访谈。访谈进行了录音、转录,并使用定性分析软件进行管理。分析遵循数据沉浸、开放编码、持续比较分析以及构建主题性和诠释性描述的程序。

结果

本研究中的护士描述了MAiD在其工作环境中的实施方式以及可用于指导其实践的实践支持存在很大差异。支持MAiD的系统的开发或缺乏,很大程度上是由有影响力的领导职位人员推动的。支持护士对MAiD做出一系列道德回应的工作场所,在这一实践的重大变革期间,对支持护士的幸福感最为有效。参与者提到团队合作在提供高质量MAiD相关护理方面的重要性;然而,许多人在没有团队支持的情况下工作。与MAiD相关的护理工作非常复杂,主要是因为在并非总是为支持以患者为中心的护理而组织的系统中需要提供以患者为中心的护理。在缺乏足够的实践支持的情况下,一些护士选择限制自己参与MAiD。

结论

本研究获得的数据表明,一些工作场所环境仍然缺乏必要的支持,使护士无法自信地满足立法规定的MAiD方式所需的精准度。如果没有可及的姑息治疗、足够的提供者、支持性团队、实践支持以及允许护士对MAiD有一系列回应的环境,护士会觉得自己在法律和道德上面临风险。寻求提供与患者生命中如此重大时刻相一致的 compassionate care(此处compassionate care可能是指富有同情心的护理,结合语境推测)的护士,在没有合适支持的情况下,发现自己陷入了众所周知的两难境地。

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