Fortuna Karen, Barr Paul, Goldstein Carly, Walker Robert, Brewer LaPrincess, Zagaria Alexandra, Bartels Stephen
Department of Psychiatry, Dartmouth College, Lebanon, NH, United States.
Brown University, Providence, RI, United States.
J Particip Med. 2019 Jan-Mar;11(1):e12380. doi: 10.2196/12380. Epub 2019 Mar 19.
Involving certified peer specialists in all phases of intervention development and research is a high priority to advance peer-delivered services. Certified peer specialists are individuals with a lived experience of a mental illness, and they are trained and accredited to provide Medicaid reimbursable mental health services. Community-engaged research can facilitate the development and implementation of peer-delivered interventions; however, little is known about the processes. We present our application of community-engaged research to inform the development and implementation of a peer-delivered mobile health (mHealth) intervention for adults with serious mental illness.
The aim of this study was to present a framework that can be used as a guide for researchers and certified peer specialists to develop and implement peer-delivered mHealth interventions in community settings.
Informed by principles of community-engaged research, we developed the Academic Researchers-Certified Peer Specialists mHealth Research Continuum. Principles of community-engaged research included in the Continuum include the following: (1) develop a clear understanding of the purpose, goal, and population involved in community change; (2) become knowledgeable about all aspects of the community; (3) interact and establish relationships with the community; (4) encourage community self-determination; (5) partner with the community; (6) respect community diversity and culture; (7) activate community assets and develop capacity; (8) maintain flexibility; and (9) commit to long-term collaboration.
Overall, 4 certified peer specialists participated in all phases of intervention development and research. Individuals who participated in the Academic Researchers-Certified Peer Specialists' mHealth Research Continuum collaborated on 5 studies advancing peers' roles in services delivery using mHealth and secured grant funding from a foundation to sustain their study. The Academic Researchers-Certified Peer Specialists' mHealth Research Continuum has created a rare environment of inclusion by combining scientific expertise and certified peer specialists' expertise to achieve a shared vision.
This study delineates a process by which academic researchers and certified peer specialists participated in community-engaged research to develop and implement peer-delivered mHealth interventions in community settings.
让认证同伴专家参与干预措施开发和研究的各个阶段，是推进同伴提供服务的重中之重。认证同伴专家是有精神疾病生活经历的个体，他们经过培训并获得认证，能够提供可获医疗补助报销的心理健康服务。社区参与研究有助于同伴提供的干预措施的开发与实施；然而，对相关流程却知之甚少。我们介绍了社区参与研究在为患有严重精神疾病的成年人开发和实施同伴提供的移动健康（mHealth）干预措施中的应用。
本研究旨在提出一个框架，可供研究人员和认证同伴专家用作指南，以在社区环境中开发和实施同伴提供的mHealth干预措施。
基于社区参与研究的原则，我们制定了学术研究人员 - 认证同伴专家mHealth研究连续体。该连续体纳入的社区参与研究原则包括：（1）清楚了解社区变革涉及的目的、目标和人群；（2）熟悉社区的各个方面；（3）与社区互动并建立关系；（4）鼓励社区自主；（5）与社区建立伙伴关系；（6）尊重社区多样性和文化；（7）激活社区资产并培养能力；（8）保持灵活性；（9）致力于长期合作。
总体而言，4名认证同伴专家参与了干预措施开发和研究的各个阶段。参与学术研究人员 - 认证同伴专家mHealth研究连续体的人员合作开展了5项研究，推进同伴在使用mHealth提供服务中的作用，并从一个基金会获得了资助以维持他们的研究。学术研究人员 - 认证同伴专家mHealth研究连续体通过结合科学专业知识和认证同伴专家的专业知识，营造了一个难得的包容环境，以实现共同愿景。
本研究描述了一个过程，通过该过程学术研究人员和认证同伴专家参与社区参与研究，以在社区环境中开发和实施同伴提供的mHealth干预措施。
