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同伴支持专家与服务使用者对数字心理健康的隐私、保密及安全问题的看法。

Peer Support Specialists and Service Users' Perspectives on Privacy, Confidentiality, and Security of Digital Mental Health.

作者信息

Venegas Maria D, Brooks Jessica M, Myers Amanda L, Storm Marianne, Fortuna Karen L

机构信息

Department of Veterans Affairs GRECC, Bedford, VA, 01730, USA.

University of Wisconin-Madison, Madison, WI, 53701, USA.

出版信息

IEEE Pervasive Comput. 2022 Apr-Jun;21(2):41-50. doi: 10.1109/MPRV.2022.3141986. Epub 2022 Mar 1.

Abstract

As the digitalization of mental health systems progresses, the ethical and social debate on the use of these mental health technologies has seldom been explored among end-users. This article explores how service users (e.g., patients and users of mental health services) and peer support specialists understand and perceive issues of privacy, confidentiality, and security of digital mental health interventions. Semi-structured qualitative interviews were conducted among service users (n = 17) and peer support specialists (n = 15) from a convenience sample at an urban community mental health center in the United States. We identified technology ownership and use, lack of technology literacy including limited understanding of privacy, confidentiality, and security as the main barriers to engagement among service users. Peers demonstrated a high level of technology engagement, literacy of digital mental health tools, and a more comprehensive awareness of digital mental health ethics. We recommend peer support specialists as a potential resource to facilitate the ethical engagement of digital mental health interventions for service users. Finally, engaging potential end-users in the development cycle of digital mental health support platforms and increased privacy regulations may lead the field to a better understanding of effective uses of technology for people with mental health conditions. This study contributes to the ongoing debate of digital mental health ethics, data justice, and digital mental health by providing a first-hand experience of digital ethics from end-users' perspectives.

摘要

随着心理健康系统数字化进程的推进,关于这些心理健康技术使用的伦理和社会辩论在终端用户中很少被探讨。本文探讨了服务使用者(如患者和心理健康服务使用者)以及同伴支持专家如何理解和看待数字心理健康干预措施中的隐私、保密和安全问题。在美国一个城市社区心理健康中心,我们从便利样本中选取了17名服务使用者和15名同伴支持专家进行了半结构化定性访谈。我们发现技术所有权和使用、缺乏技术素养(包括对隐私、保密和安全的理解有限)是服务使用者参与的主要障碍。同伴们表现出较高的技术参与度、对数字心理健康工具的素养,以及对数字心理健康伦理更全面的认识。我们建议将同伴支持专家作为促进服务使用者对数字心理健康干预措施进行符合伦理参与的潜在资源。最后,让潜在的终端用户参与数字心理健康支持平台的开发周期以及加强隐私法规,可能会使该领域更好地理解如何有效地将技术用于有心理健康问题的人群。本研究通过从终端用户的角度提供数字伦理的第一手经验,为正在进行的数字心理健康伦理、数据正义和数字心理健康辩论做出了贡献。

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