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Association of Patient Priorities-Aligned Decision-Making With Patient Outcomes and Ambulatory Health Care Burden Among Older Adults With Multiple Chronic Conditions: A Nonrandomized Clinical Trial.患者优先排序决策与多重慢性病老年人的患者结局及门诊医疗负担的关联:一项非随机临床试验
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Health literacy, multimorbidity, and patient-perceived treatment burden in individuals with cardiovascular disease. A Danish population-based study.健康素养、多种疾病并存和心血管疾病患者的治疗负担感知。一项丹麦基于人群的研究。
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Understanding Perceived Barriers to Care Among Suburban Super-Utilizers Who Have an Identified Primary Care Provider.理解有明确初级保健提供者的郊区超高利用率者的感知护理障碍。
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Development of the concept of patient-centredness - A systematic review.以患者为中心理念的发展 - 系统评价。
Patient Educ Couns. 2019 Jul;102(7):1228-1236. doi: 10.1016/j.pec.2019.02.023. Epub 2019 Feb 27.
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Perspectives of Patients in Identifying Their Values-Based Health Priorities.患者在确定基于价值观的健康优先事项方面的观点。
J Am Geriatr Soc. 2019 Jul;67(7):1379-1385. doi: 10.1111/jgs.15850. Epub 2019 Mar 7.
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Decision Making for Older Adults With Multiple Chronic Conditions: Executive Summary for the American Geriatrics Society Guiding Principles on the Care of Older Adults With Multimorbidity.多重慢性疾病老年人的决策制定:美国老年医学学会关于多病共存老年人护理指导原则的执行摘要。
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Development of a Clinically Feasible Process for Identifying Individual Health Priorities.制定一种具有临床可行性的个体健康优先级识别流程。
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Keeping the patient in the center: Common challenges in the practice of shared decision making.以患者为中心:共同决策实践中的常见挑战。
Patient Educ Couns. 2018 Dec;101(12):2195-2201. doi: 10.1016/j.pec.2018.08.007. Epub 2018 Aug 6.
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Development and Initial Validation of the Caregiver Perceptions About Communication With Clinical Team Members (CAPACITY) Measure.照顾者对与临床团队成员沟通的感知量表(CAPACITY)的编制与初步验证。
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“希望与愿望”:高需求、高花费老年患者及其照护者的目标。

"Hopes and wishes": Goals of high-need, high-cost older patients and their caregivers.

机构信息

Geriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA; University of Wisconsin School of Medicine and Public Health, Madison, WI, USA.

Geriatrics Research, Education and Clinical Center (GRECC), W.S. Middleton Memorial Veterans Hospital, Madison, WI, USA; School of Nursing, University of Wisconsin, Madison, WI, USA.

出版信息

Patient Educ Couns. 2020 Jul;103(7):1428-1434. doi: 10.1016/j.pec.2020.02.022. Epub 2020 Feb 15.

DOI:10.1016/j.pec.2020.02.022
PMID:32098745
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7286795/
Abstract

OBJECTIVE

Integration of patient-identified goals is a critical element of shared decision-making and patient-provider communication. There is limited information on the goals of patients with multiple medical conditions and high healthcare utilization. We aimed to identify and categorize the goals described by "high-need, high-cost" (HNHC) older patients and their caregivers.

METHODS

Using conventional content analysis, we used data from interviews conducted with 17 HNHC older patients (mean age 72.5 years) and 4 caregivers.

RESULTS

HNHC older patients and their caregivers used language such as "hopes, wishes, and wants" to describe their goals, which fell into eight categories: alleviating discomfort, having autonomy and control, decreasing treatment burden, maintaining physical functioning and engagement, leaving a legacy, extending life, having satisfying and effective relationships, and experiencing security.

CONCLUSION

Our results contribute to knowledge of goals of HNHC patients and provides guidance for improving the patient-provider relationship and communication between HNHC older patients and their healthcare providers.

PRACTICE IMPLICATIONS

Our findings can inform provider efforts to assess patient goals and engage high-need, high-cost older patients in shared decision-making. Further, this study contributes to an improved understanding of HNHC older patients to support continued development of effective care models for this population.

摘要

目的

将患者确定的目标整合到共同决策和医患沟通中是至关重要的。关于具有多种医疗状况和高医疗保健利用率的患者的目标信息有限。我们旨在确定和分类“高需求、高成本”(HNHC)老年患者及其照顾者所描述的目标。

方法

使用常规内容分析,我们使用了对 17 名 HNHC 老年患者(平均年龄 72.5 岁)和 4 名照顾者进行的访谈数据。

结果

HNHC 老年患者及其照顾者使用“希望、愿望和需求”等语言来描述他们的目标,这些目标分为八个类别:缓解不适、拥有自主权和控制、减轻治疗负担、维持身体功能和参与、留下遗产、延长生命、拥有满意和有效的关系以及体验安全。

结论

我们的研究结果有助于了解 HNHC 患者的目标,并为改善医患关系以及 HNHC 老年患者及其医疗保健提供者之间的沟通提供指导。

实践意义

我们的研究结果可以为评估患者目标和让高需求、高成本的老年患者参与共同决策的提供者提供信息。此外,本研究有助于更好地了解 HNHC 老年患者,以支持为这一人群继续开发有效的护理模式。