Division of Psychiatry & Applied Psychology, University of Nottingham, Nottingham, England.
UK & Centre for ADHD and Neurodevelopmental Disorders Across the Lifespan (CANDAL), Institute of Mental Health, University of Nottingham, Nottingham, England.
BMC Fam Pract. 2020 Feb 28;21(1):45. doi: 10.1186/s12875-020-01112-1.
Attention Deficit Hyperactivity Disorder (ADHD) is underdiagnosed in many European countries and the process of accessing care and diagnosis is complex and variable. In many countries, general practitioners (GPs) refer on to secondary care where individuals receive an assessment and, if appropriate, a diagnosis and access to care. It is therefore essential that GPs have a clear understanding of the disorder and its care pathways. While previous studies have highlighted potential barriers in GPs' ADHD awareness, this qualitative study aims to further explore individual stakeholders' experiences.
Semi-structured interviews explored the views of multiple stakeholders- GPs (n = 5), healthcare specialists (n = 5), patients (adults with ADHD n = 5) and parents (n = 5) with experience of the presentation and management of ADHD in primary care. These interviews were analysed using thematic analyses and following principles of grounded theory.
Stakeholders described ADHD assessment, diagnosis and treatment as an intricate process. Many factors affected this process such as complex pathways, lack of services, limited GP recognition and knowledge, and communicative difficulties between and within multiple stakeholders.
This analysis underlines the significant impact that receiving (or not) a diagnosis can have, and further explores muddled ADHD care pathways, highlighting key issues around GP identification and the shortage of adult services. Implications for practice and future research are discussed, suggesting a strong need for more commissioned pathways and GP specific educational programs.
在许多欧洲国家,注意力缺陷多动障碍(ADHD)的诊断不足,并且获得治疗和诊断的过程复杂且多变。在许多国家,全科医生(GP)会将患者转诊至二级保健机构,在那里患者会接受评估,如果合适的话,还会得到诊断和治疗。因此,GP 必须清楚了解这种疾病及其治疗途径。尽管之前的研究强调了 GP 对 ADHD 的认识可能存在障碍,但这项定性研究旨在进一步探讨个别利益相关者的经验。
半结构化访谈探讨了多个利益相关者(GP[5 名]、医疗保健专家[5 名]、有 ADHD 病史的成年患者[5 名]和有 ADHD 就诊和管理经验的家长[5 名])的观点。这些访谈使用主题分析和扎根理论原则进行分析。
利益相关者描述了 ADHD 的评估、诊断和治疗是一个复杂的过程。许多因素影响了这个过程,例如复杂的途径、缺乏服务、GP 识别和知识有限,以及多个利益相关者之间和内部的沟通困难。
该分析强调了获得(或未获得)诊断可能产生的重大影响,并进一步探讨了混乱的 ADHD 治疗途径,突出了围绕 GP 识别和成人服务短缺的关键问题。讨论了对实践和未来研究的影响,表明强烈需要更多委托的途径和针对 GP 的教育计划。