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芬兰严重呼吸功能不全问卷的验证。

Validation of the Finnish severe respiratory insufficiency questionnaire.

机构信息

HUH Heart and Lung Center, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.

Doctoral Programme in Clinical Research, University of Helsinki, Helsinki, Finland.

出版信息

Clin Respir J. 2020 Jul;14(7):659-666. doi: 10.1111/crj.13181. Epub 2020 Mar 23.

Abstract

INTRODUCTION

Chronic respiratory insufficiency impacts patients' lives and reduces quality of life. The Severe Respiratory Insufficiency (SRI) questionnaire examines health-related quality of life and is designed specifically for patients receiving home mechanical ventilation (HMV) for chronic respiratory failure (CRF).

OBJECTIVES

The aim of this study was to validate the Finnish version of the SRI and study its reproducibility in patients with CRF.

METHODS

Our 74 patients receiving HMV or long-term oxygen treatment for CRF or both completed the SRI and St George's Respiratory questionnaires (SGRQ) three times (at baseline, and then one week and one month later). Reliability and validity of the questionnaires was analysed with Cronbach's alpha and intraclass correlation coefficient. Patients were prospectively followed up for 5 years, with data collected on their use of hospital services and mortality.

RESULTS

Cronbach's alpha in the SRI ranged from 0.67 to 0.88 and was >0.7 on all subscales except the "attendant symptoms and sleep". On four subscales, Cronbach's alpha was >0.8, and on the summary scale, 0.95. The SRI showed high correlation with SGRQ. Both tests showed good reproducibility. During the 5-year follow-up, 27 (36%) patients died.

CONCLUSIONS

The Finnish SRI proved valid, reliable and reproducible. Its psychometric properties were good and similar to those of the original questionnaire and of other validation studies.

摘要

简介

慢性呼吸功能不全影响患者的生活并降低生活质量。严重呼吸功能不全(SRI)问卷评估与健康相关的生活质量,专为接受慢性呼吸衰竭(CRF)家庭机械通气(HMV)的患者设计。

目的

本研究旨在验证芬兰版 SRI,并研究其在 CRF 患者中的可重复性。

方法

我们的 74 名接受 HMV 或长期氧疗的 CRF 患者或两者均完成了 SRI 和圣乔治呼吸问卷(SGRQ)三次(基线时,然后一周和一个月后)。使用 Cronbach's alpha 和组内相关系数分析问卷的可靠性和有效性。前瞻性随访患者 5 年,收集其使用医院服务和死亡率的数据。

结果

SRI 的 Cronbach's alpha 范围为 0.67 至 0.88,除“伴随症状和睡眠”外,所有子量表均>0.7。在四个子量表中,Cronbach's alpha>0.8,在总量表中为 0.95。SRI 与 SGRQ 高度相关。两种测试均具有良好的可重复性。在 5 年随访期间,27 名(36%)患者死亡。

结论

芬兰版 SRI 被证明有效、可靠且具有可重复性。其心理测量特性良好,与原始问卷和其他验证研究相似。

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