Department of Industrial and Systems Engineering, University of Wisconsin - Madison, USA.
School of Nursing, University of Wisconsin - Madison, USA.
Appl Ergon. 2020 May;85:103070. doi: 10.1016/j.apergo.2020.103070. Epub 2020 Feb 8.
Informal caregivers are an integral part of care delivery for persons with dementia (PwD). Informal caregivers take part in a wide range of care activities both individually and collaboratively with other caregivers. Caregiving often involves high demands in the face of limited resources, which can lead to stress, burden, and burnout. To support caregivers, we need to conceptualize caregiving activities they perform, and the networks and roles through which they perform work. We performed a directed content analysis on interview data from twenty caregivers and applied a human factors approach to characterize informal caregiving work. Our results revealed 1) nuances in caregiving roles, 2) differences in caregiving networks, and 3) 13 categories of caregiving activities characterized by time commitments; physical, cognitive and socio-behavioral demands; and varying network dependencies. These findings can be applied in future studies to evaluate the needs of caregiving networks and how to better support them.
非专业照料者是痴呆症患者（PwD）护理服务的重要组成部分。非专业照料者单独或与其他照料者合作参与广泛的护理活动。在资源有限的情况下，照料工作通常需要很高的要求，这可能导致压力、负担和倦怠。为了支持照料者，我们需要对他们所执行的照料活动以及他们开展工作的网络和角色进行概念化。我们对 20 名照料者的访谈数据进行了定向内容分析，并采用人为因素方法对非专业照料工作进行了特征描述。研究结果揭示了：1）照料角色的细微差别，2）照料网络的差异，以及 3）13 类照料活动，其特点是时间投入；身体、认知和社会行为需求；以及不同的网络依赖性。这些发现可应用于未来的研究，以评估照料网络的需求以及如何更好地支持他们。
