Neubert Lydia, König Hans-Helmut, Brettschneider Christian
Department of Health Economics and Health Services Research Hamburg, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
BMJ Open. 2018 Feb 27;8(2):e019444. doi: 10.1136/bmjopen-2017-019444.
The debate on reconciliation between childcare and working has to be expanded to caregiving for the elderly, since the importance of informal caregiving will increase in the future due to populations' ageing and women's increasing labour force participation. Informal caregivers who are caring for the rising number of persons with dementia (PwD) are often female and subjected to high caregiving requirements. These are added to further demands emerging from their family and work life. How affected caregivers seek to balance those requirements depends on, inter alia, their own characteristics and the informal caregiving network to whom they relate. Both aspects were not yet considered in previous studies. This mixed methods study thus aims to explore the reconciliation between caregiving in dementia, family and employment by including different members of caregiving networks of home-dwelling PwD and by considering their personal characteristics.
By purposive sampling, we include at least five caregiving networks of home-dwelling PwD; each of them consisting of at least three informal caregivers living in Northern Germany. Narrative interviews of participants will be recorded, transcribed verbatim and interpreted according to the Documentary Method (QUAL). By completing standardised questionnaires, participants will provide sociodemographic and psychographic data concerning themselves and the networks from whom they arise (quan). This supplemental, descriptive information will give further background to the themes and types emerging from the interviews. Hence, the quan-data enrich the QUAL-data by exploring the narratives of participants in the light of their personal and network-related characteristics.
Ethical approval was obtained from the Ethics Committee of the German Society of Nursing Sciences. Study results will be disseminated through conference presentations and publications in peer-reviewed journals.
DRKS00012929.
关于育儿与工作之间平衡的讨论必须扩展到对老年人的照料，因为随着人口老龄化和女性劳动力参与率的上升，非正式照料的重要性在未来将会增加。照顾越来越多痴呆症患者的非正式照料者通常是女性，并且面临着很高的照料需求。这些需求之外，她们还要应对来自家庭和工作生活的更多要求。受影响的照料者如何寻求平衡这些需求尤其取决于他们自身的特点以及与之相关的非正式照料网络。以往的研究尚未考虑这两个方面。因此，这项混合方法研究旨在通过纳入居家痴呆症患者照料网络的不同成员并考虑他们的个人特征，来探索痴呆症照料、家庭与就业之间的平衡。
通过目的抽样，我们纳入至少五个居家痴呆症患者的照料网络；每个网络至少由三名居住在德国北部的非正式照料者组成。参与者的叙事访谈将被记录、逐字转录，并根据文献法（质性研究）进行解读。通过填写标准化问卷，参与者将提供有关他们自己以及他们所属网络的社会人口统计学和心理特征数据（量化研究）。这些补充性的描述性信息将为访谈中出现的主题和类型提供更多背景。因此，量化数据通过根据参与者的个人和网络相关特征来探究他们的叙事，丰富了质性研究数据。
已获得德国护理科学学会伦理委员会的伦理批准。研究结果将通过会议报告和在同行评审期刊上发表来进行传播。
DRKS00012929。
