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理解和支持非正式癌症护理者。

Understanding and Supporting Informal Cancer Caregivers.

机构信息

School of Nursing, The Hong Kong Polytechnic University, Hong Kong, Hong Kong SAR.

出版信息

Curr Treat Options Oncol. 2022 Apr;23(4):494-513. doi: 10.1007/s11864-022-00955-3. Epub 2022 Mar 14.

DOI:10.1007/s11864-022-00955-3
PMID:35286571
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8918600/
Abstract

Informal caregivers invest a significant amount of time and effort to provide cancer patients with physical, psychological, information, and social support. These challenging tasks can harm their own health and well-being, while a series of social-ecological factors may also influence the outcomes of cancer caregiving. Several instruments have been developed to help clinicians and researchers understand the multi-dimensional needs and concerns of caregivers. A growing body of evidence indicates that supportive interventions including psychoeducation, skills training, and therapeutic counseling can help improve the burden, information needs, coping strategies, physical functioning, psychological well-being, and quality of life of caregivers. However, there is difficulty in translating research evidence into practice. For instance, some supportive interventions tested in clinical trial settings are regarded as inconsistent with the actual needs of caregivers. Other significant considerations are the lack of well-trained interdisciplinary teams for supportive care provision and insufficient funding. Future research should include indicators that can attract decision-makers and funders, such as improving the efficient utilization of health care services and satisfaction of caregivers. It is also important for researchers to work closely with key stakeholders, to facilitate evidence dissemination and implementation, to benefit caregivers and the patient.

摘要

非专业照护者投入大量的时间和精力为癌症患者提供身体、心理、信息和社会支持。这些艰巨的任务可能会损害他们自身的健康和福祉,而一系列社会生态因素也可能影响癌症照护的结果。已经开发了几种工具来帮助临床医生和研究人员了解照护者多维度的需求和关注点。越来越多的证据表明,支持性干预措施,包括心理教育、技能培训和治疗咨询,可以帮助减轻照护者的负担、满足他们的信息需求、改善应对策略、提高身体机能、改善心理健康和生活质量。然而,将研究证据转化为实践存在困难。例如,一些在临床试验环境中测试的支持性干预措施被认为与照护者的实际需求不一致。其他需要考虑的重要因素是缺乏训练有素的跨学科团队来提供支持性护理,以及资金不足。未来的研究应包括能吸引决策者和资助者的指标,例如提高医疗服务的有效利用率和照护者的满意度。研究人员与利益攸关方密切合作,促进证据传播和实施,使照护者和患者受益,这也很重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2609/8918600/017e8fc1ca55/11864_2022_955_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2609/8918600/017e8fc1ca55/11864_2022_955_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2609/8918600/017e8fc1ca55/11864_2022_955_Fig1_HTML.jpg

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Variables associated with distress amongst informal caregivers of people with lung cancer: A systematic review of the literature.
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Assessing social support networks in cancer survivors and their care partners: concordance between expected and received support.评估癌症幸存者及其护理伙伴的社会支持网络:预期支持与实际获得支持之间的一致性。
J Cancer Surviv. 2025 Aug 19. doi: 10.1007/s11764-025-01880-8.
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A short form tool for clinical assessment of caregivers' reaction.一种用于临床评估照顾者反应的简短工具。
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