Centre for Aboriginal Medical and Dental Health, University of Western Australia, Perth.
Department of Medicine, University of Melbourne, Victoria.
Gerontologist. 2021 Jul 13;61(5):e163-e172. doi: 10.1093/geront/gnz185.
The lack of appropriate quality of life (QoL) measures is a major barrier to planning and delivering health and aged care services for older Indigenous peoples worldwide. QoL is dependent on cultural values and priorities may vary between age groups. This project aims to develop a QoL tool for older Aboriginal Australians.
The study was completed with Aboriginal Australians aged over 45 years living in Perth and Melbourne, Australia. Participatory Action Research methods were applied with an Indigenous research paradigm. Semistructured interviews were undertaken to identify the factors important to having a good life. Factors were further explored in yarning groups with older Aboriginal peoples to develop the draft QoL tool questions. Face validity of the tool was completed in two regions.
The participants preferred the term "a good life" to QoL. Having a good spirit is at the core of having a good life. The protective factors for a good life were family and friends, health, culture, Elder role, respect, Country, spirituality, services and supports, community, future plans, safety and security, and basic needs.
Twelve factors were identified and developed into key questions for the Good Spirit, Good Life tool. The draft tool will undergo quantitative validity testing, prior to embedding in service provision to inform care for older Aboriginal peoples. With local adaptation, the tool, accompanying framework, and participatory methods for development may have wider applicability to other Indigenous populations worldwide.
全球范围内,缺乏合适的生活质量(QoL)衡量标准是规划和提供老年原住民健康和老年护理服务的主要障碍。QoL 取决于文化价值观,且优先事项可能因年龄组而异。本项目旨在为老年澳大利亚原住民开发一个 QoL 工具。
本研究纳入了居住在澳大利亚珀斯和墨尔本的 45 岁以上的澳大利亚原住民。采用参与式行动研究方法,遵循本土研究范式。通过半结构化访谈确定对美好生活有重要影响的因素。然后,在与老年原住民的恳谈小组中进一步探讨这些因素,以制定 QoL 工具的草案问题。该工具的表面效度在两个地区进行了评估。
参与者更喜欢用“美好生活”来表示 QoL。拥有美好的精神是美好生活的核心。美好生活的保护因素包括家庭和朋友、健康、文化、长辈角色、尊重、土地、精神信仰、服务和支持、社区、未来计划、安全保障和基本需求。
确定了 12 个因素,并将其发展成为“美好精神,美好生活”工具的关键问题。该草案工具将在进行定量有效性测试后,嵌入到为老年原住民提供的服务中,以为其提供关怀。经过本土化调整,该工具、配套框架和开发的参与式方法可能具有更广泛的适用性,适用于全球其他原住民群体。