一种用于衡量参与以患者为导向研究程度的工具的创建。

The Creation of a Tool to Measure Engagement in Patient-Oriented Research.

作者信息

Keller Malori, Plishka Christopher, King Malcolm, Gunderson Janet, Stobart Christine Andrews, Dunn Kate, Haver Charlene R A

机构信息

The Patient Engagement & Empowerment Platform lead at the Saskatchewan Centre for Patient-Oriented Research. Her work focuses on supporting the advancement of patient engagement and patient- and family-centred care in health research and health system improvement. She can be reached by e-mail at

A methods platform facilitator at the Saskatchewan Centre for Patient-Oriented Research. His work focuses on identifying and addressing the needs of researchers engaging in patient-oriented and community-engaged research.

出版信息

Healthc Q. 2020 Apr;23(1):34-38. doi: 10.12927/hcq.2020.26141.

DOI:10.12927/hcq.2020.26141

PMID:32249737

Abstract

In 2017, the Saskatchewan Centre for Patient-Oriented Research (SCPOR) engaged patient and family advisors (PFAs) to review patient-oriented research grant proposals. The PFAs observed that the reviews would be less subjective if they were assessing the projects based on more rigorous criteria. Together the PFAs and SCPOR staff members developed a tool based on the Canadian Institutes of Health Research's Strategy for Patient-Oriented Research definition for patient-oriented research and the International Association for Public Participation's Spectrum of Public Participation. This article discusses the process of initiating a patient-identified project and co-creating the tool to indicate the level of patient-orientedness.

摘要

2017年，萨斯喀彻温省患者导向研究中心（SCPOR）聘请了患者及家属顾问（PFA）来评审患者导向研究资助提案。患者及家属顾问们发现，如果依据更严格的标准来评估项目，评审将减少主观性。患者及家属顾问与SCPOR工作人员共同开发了一种工具，该工具基于加拿大卫生研究院的患者导向研究战略中对患者导向研究的定义以及国际公众参与协会的公众参与范围。本文讨论了启动一个由患者确定的项目以及共同创建该工具以表明患者导向程度的过程。