University Library, University of Saskatchewan, Saskatoon, Saskatchewan, Canada.
Patient Partner, Saskatoon, Saskatchewan, Canada.
Health Expect. 2021 Aug;24(4):1056-1071. doi: 10.1111/hex.13279. Epub 2021 May 28.
A growing literature describes promising practices for patient-oriented research (POR) generally; however, those for systematic reviews are largely derived through the lens of a researcher. This rapid review sought to understand meaningful engagement in synthesis reviews from the patient partner (PP) perspective.
The review team comprised PPs, librarians, SCPOR staff and academic faculty. We searched OVID MEDLINE and EMBASE, ProQuest Nursing and Allied Health, and core POR websites. Documents describing PP reflections on their involvement in synthesis reviews were included. Screening and data extraction were conducted by two independent reviewers. Thematic analysis was employed to identify themes in the data regarding PP perceptions of engagement in synthesis reviews.
The literature search yielded 1386 citations. Eight journal articles and one blog post were included. Seven studies focused on conducting systematic reviews on a particular health or patient-related topic to which PP involvement was an important part and two studies focused specifically on the experience of including PP in synthesis reviews. PPs engaged in the review process through a variety of mechanisms, levels and stages of the review process. Three major themes emerged from the data: (1) foster partnerships through team development, (2) provide opportunities for outcomes valued by PP and (3) strengthen the research endeavour.
Fostering partnerships through team development is foundational for meaningful engagement in synthesis reviews. It requires sensitively balancing of various needs (eg overburdening with contributions). Meaningful involvement in reviews has both personal and research benefits.
Patient partners were equal collaborators in all aspects of the review.
越来越多的文献描述了以患者为中心的研究（POR）的有前景的实践；然而，这些实践在很大程度上是通过研究人员的视角得出的。本次快速综述旨在从患者伙伴（PP）的角度了解对综合综述的有意义的参与。
审查团队由 PP、图书馆员、SCPOR 工作人员和学术教师组成。我们在 OVID MEDLINE 和 EMBASE、ProQuest 护理和联合健康以及核心 POR 网站上进行了搜索。纳入描述 PP 对其参与综合综述的反思的文献。两名独立审查员进行了筛选和数据提取。采用主题分析来确定数据中关于 PP 对参与综合综述的看法的主题。
文献检索产生了 1386 条引文。纳入了 8 篇期刊文章和 1 篇博客文章。7 项研究侧重于对特定的健康或患者相关主题进行系统综述，PP 的参与是重要组成部分，另外两项研究专门侧重于纳入 PP 参与综合综述的经验。PP 通过各种机制、审查过程的不同水平和阶段参与审查过程。数据中出现了三个主要主题：（1）通过团队发展建立伙伴关系，（2）为 PP 重视的结果提供机会，以及（3）加强研究工作。
通过团队发展建立伙伴关系是综合综述中进行有意义的参与的基础。这需要敏感地平衡各种需求（例如因贡献而过度负担）。在审查中进行有意义的参与既有个人利益也有研究利益。
患者伙伴在审查的各个方面都是平等的合作者。
