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倡导声明中关于姑息治疗、安乐死和协助死亡的表述。

Representations of palliative care, euthanasia and assisted dying within advocacy declarations.

作者信息

Inbadas Hamilton, Carrasco José Miguel, Clark David

机构信息

School of Interdisciplinary Studies, University of Glasgow, Dumfries, UK.

Scottish Episcopal Church, Forres, UK.

出版信息

Mortality (Abingdon). 2019 Feb 4;25(2):138-150. doi: 10.1080/13576275.2019.1567484. eCollection 2020.

Abstract

It is well known that there are disagreements between the proponents of palliative care and of euthanasia or assisted dying, often with little common ground,shaping the end of life discourse internationally. Advocacy documents or 'declarations'constitute a significant feature of this discourse. The aim of this study was to explore the content of such declarations and to focus on what they can tell us about palliative care and assisted dying and their dispositions towards one another. 104 declarations were identified and included in the study, covering the period 1974 to 2017. These declarations were analysed following the principles of thematic content analysis. We classified them based on their primary purpose: those with the goal of advocating for palliative care services, education and research were grouped under 'palliative care declarations'; those with the primary objective of advocating for or against euthanasia/assisted dying were classified as "euthanasia/assisted dying declarations". Our analysis revealed that the content of the declarations could be broadly categorised into three dimensions: framing, claiming and demanding. We demonstrate that these declarations reveal a struggle over the construction of meanings relating to palliative care and assisted dying and constitute a valuable resource for the analysis of an unfolding debate.

摘要

众所周知,姑息治疗的支持者与安乐死或协助死亡的支持者之间存在分歧,而且往往几乎没有共同立场,这在国际上塑造了关于生命终结的讨论。倡导文件或“宣言”是这一讨论的一个显著特征。本研究的目的是探讨此类宣言的内容,并关注它们能告诉我们关于姑息治疗和协助死亡的哪些信息,以及它们对彼此的态度。共识别出104份宣言并纳入本研究,涵盖1974年至2017年期间。这些宣言按照主题内容分析的原则进行了分析。我们根据其主要目的对它们进行了分类:以倡导姑息治疗服务、教育和研究为目标的宣言归为“姑息治疗宣言”;以倡导或反对安乐死/协助死亡为主要目标的宣言归类为“安乐死/协助死亡宣言”。我们的分析表明,宣言的内容大致可分为三个维度:框架构建、主张和要求。我们证明,这些宣言揭示了在与姑息治疗和协助死亡相关的意义构建上的斗争,并且构成了分析一场正在展开的辩论的宝贵资源。

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本文引用的文献

1
Declarations on euthanasia and assisted dying.关于安乐死和协助自杀的宣言。
Death Stud. 2017 Oct;41(9):574-584. doi: 10.1080/07481187.2017.1317300. Epub 2017 Apr 11.
3
Palliative Care Declarations: Mapping a New Form of Intervention.姑息治疗声明:探寻一种新的干预形式
J Pain Symptom Manage. 2016 Sep;52(3):e7-e15. doi: 10.1016/j.jpainsymman.2016.05.009. Epub 2016 Jul 9.
7
Safeguarding choice at the end of life.在生命尽头维护选择权。
J Med Ethics. 2015 Aug;41(8):575-6. doi: 10.1136/medethics-2015-102990.
8
A charter for the rights of the dying child.一份关于垂死儿童权利的宪章。
Lancet. 2014 May 3;383(9928):1547-8. doi: 10.1016/S0140-6736(14)60746-7.
9
Euthanasia is not medical treatment.安乐死不是医疗行为。
Br Med Bull. 2013;106:45-66. doi: 10.1093/bmb/ldt010. Epub 2013 Mar 26.

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