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2
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本文引用的文献

1
Why public funding for non-invasive prenatal testing (NIPT) might still be wrong: a response to Bunnik and colleagues.为何公共资金仍不适用于非侵入性产前检测(NIPT):对 Bunnik 等人的回应。
J Med Ethics. 2020 Nov;46(11):781-782. doi: 10.1136/medethics-2019-105885. Epub 2019 Nov 12.
2
TRIDENT-2: National Implementation of Genome-wide Non-invasive Prenatal Testing as a First-Tier Screening Test in the Netherlands.TRIDENT-2:荷兰全国范围内实施全基因组非侵入性产前筛查作为一级筛查检测。
Am J Hum Genet. 2019 Dec 5;105(6):1091-1101. doi: 10.1016/j.ajhg.2019.10.005. Epub 2019 Nov 7.
3
Should pregnant women be charged for non-invasive prenatal screening? Implications for reproductive autonomy and equal access.孕妇应该为非侵入性产前筛查付费吗?对生殖自主权和平等获得的影响。
J Med Ethics. 2020 Mar;46(3):194-198. doi: 10.1136/medethics-2019-105675. Epub 2019 Sep 16.
4
Older mothers and increased impact of prenatal screening: stable livebirth prevalence of trisomy 21 in the Netherlands for the period 2000-2013.高龄产妇和产前筛查影响增大:2000-2013 年荷兰活产唐氏综合征的患病率稳定。
Eur J Hum Genet. 2018 Feb;26(2):157-165. doi: 10.1038/s41431-017-0075-1. Epub 2018 Jan 12.
5
Ethnicity and Language Proficiency Differences in the Provision of and Intention to Use Prenatal Screening for Down's Syndrome and Congenital Anomalies. A Prospective, Non-selected, Register-Based Study in the Netherlands.唐氏综合征和先天性异常产前筛查的提供情况及使用意愿中的种族和语言能力差异。荷兰一项基于登记册的前瞻性非选择性研究。
Matern Child Health J. 2018 Mar;22(3):343-354. doi: 10.1007/s10995-017-2364-2.
6
'You are inferior!' Revisiting the expressivist argument.“你低人一等!”再探表现主义论证。
Bioethics. 2017 Sep;31(7):505-514. doi: 10.1111/bioe.12365. Epub 2017 Jun 14.
7
Reasons for accepting or declining Down syndrome screening in Dutch prospective mothers within the context of national policy and healthcare system characteristics: a qualitative study.在国家政策和医疗保健系统特征背景下,荷兰准母亲接受或拒绝唐氏综合征筛查的原因:一项定性研究
BMC Pregnancy Childbirth. 2016 May 26;16(1):121. doi: 10.1186/s12884-016-0910-3.
8
Decision making in prenatal screening: money matters.产前筛查中的决策:金钱问题。
Acta Obstet Gynecol Scand. 2015 Feb;94(2):212-4. doi: 10.1111/aogs.12518. Epub 2014 Oct 26.
9
One principle and three fallacies of disability studies.残疾研究的一个原则与三个谬误。
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为什么 NIPT 应该被公共资助。

Why NIPT should be publicly funded.

机构信息

Medical Ethics, Philosophy and History of Medicine, Erasmus MC, University Medical Centre Rotterdam, Rotterdam, The Netherlands

Medical Ethics, Philosophy and History of Medicine, Erasmus MC, University Medical Centre Rotterdam, Rotterdam, The Netherlands.

出版信息

J Med Ethics. 2020 Nov;46(11):783-784. doi: 10.1136/medethics-2020-106218. Epub 2020 Apr 10.

DOI:10.1136/medethics-2020-106218
PMID:32277019
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7656139/
Abstract

Asking pregnant women to (co)pay for non-invasive prenatal testing (NIPT) out of pocket leads to unequal access across socioeconomic strata. To avoid these social justice issues, first-trimester prenatal screening should be publicly funded in countries such as the Netherlands, with universal coverage healthcare systems that offer all other antenatal care services and screening programmes free of charge. In this reply, we offer three additional reasons for public funding of NIPT. First, NIPT may not primarily have medical utility for women and children, but rather offers relevant information and reproductive options, and thus serves important autonomy interests of women. Second, public funding of NIPT can be justified because it results in a reduction of collectively borne costs associated with care and support for children with chromosomal abnormalities. It is important to note that this is an argument for individual women to take part in screening or to terminate an affected pregnancy. However, it a legitimate argument in policy making regarding funding arrangements for screening programmes. Finally, public funding would help to amend current misunderstandings among pregnant women (eg, that they are not at risk), and thus to support informed consent for first-trimester prenatal screening.

摘要

要求孕妇自费进行无创产前检测 (NIPT) 会导致社会经济阶层之间获得机会不平等。为避免这些社会公正问题,在荷兰等国家,应将孕早期产前筛查纳入公共资金资助范围,这些国家实行普及全民的医疗保健系统,为所有其他产前护理服务和筛查计划提供免费服务。在本回复中,我们提出了公共资助 NIPT 的另外三个理由。首先,NIPT 对妇女和儿童的主要医疗效用可能不大,而是提供相关信息和生殖选择,因此服务于妇女的重要自主利益。其次,公共资助 NIPT 是合理的,因为它减少了与照顾和支持染色体异常儿童相关的集体承担的费用。需要注意的是,这是为了证明个别妇女参与筛查或终止受影响妊娠的正当性。然而,这是制定筛查计划资金安排政策的一个合理论点。最后,公共资助将有助于纠正孕妇当前的误解(例如,她们没有风险),从而支持对孕早期产前筛查的知情同意。