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本文引用的文献

1
Public and patient participation in health policy, care and research.公众和患者参与卫生政策、医疗保健及研究。
Porto Biomed J. 2017 Mar-Apr;2(2):31-32. doi: 10.1016/j.pbj.2017.01.001. Epub 2017 Mar 1.
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A Community-Based Participatory Action Research for Roma Health Justice in a Deprived District in Spain.基于社区的参与式行动研究:西班牙贫困地区的罗姆人健康正义。
Int J Environ Res Public Health. 2019 Oct 2;16(19):3722. doi: 10.3390/ijerph16193722.
3
Recency of migration, region of origin and women's experience of maternity care in England: Evidence from a large cross-sectional survey.移民近期情况、原籍地区与英格兰女性的孕产护理体验:来自一项大型横断面调查的证据
Midwifery. 2018 Dec;67:87-94. doi: 10.1016/j.midw.2018.09.008. Epub 2018 Sep 21.
4
Perinatal health outcomes and care among asylum seekers and refugees: a systematic review of systematic reviews.寻求庇护者和难民的围产期健康结局和护理:系统评价的系统评价。
BMC Med. 2018 Jun 12;16(1):89. doi: 10.1186/s12916-018-1064-0.
5
Accelerate progress-sexual and reproductive health and rights for all: report of the Guttmacher-Lancet Commission.加速进步——人人享有性与生殖健康及权利:古特马赫-柳叶刀委员会报告
Lancet. 2018 Jun 30;391(10140):2642-2692. doi: 10.1016/S0140-6736(18)30293-9. Epub 2018 May 9.
6
Effect of maternal country of birth on breastfeeding practices: results from Portuguese GXXI birth cohort.母亲出生国家对母乳喂养行为的影响:葡萄牙GXXI出生队列研究结果
Int Breastfeed J. 2018 Apr 10;13:15. doi: 10.1186/s13006-018-0157-x. eCollection 2018.
7
A Concept Analysis of Patient Participation in Intermediate Care.患者参与中级护理的概念分析。
Patient Educ Couns. 2018 Aug;101(8):1337-1350. doi: 10.1016/j.pec.2018.03.005. Epub 2018 Mar 5.
8
Taking stock of Roma health policies in Spain: Lessons for health governance.盘点西班牙的罗姆人健康政策:卫生治理的经验教训。
Health Policy. 2018 Apr;122(4):444-451. doi: 10.1016/j.healthpol.2018.02.009. Epub 2018 Mar 8.
9
Factors influencing women's perceptions of shared decision making during labor and delivery: Results from a large-scale cohort study of first childbirth.影响女性在分娩期间对共同决策看法的因素:一项大规模初产妇队列研究的结果。
Patient Educ Couns. 2018 Jun;101(6):1130-1136. doi: 10.1016/j.pec.2018.01.002. Epub 2018 Jan 5.
10
Who wants to be involved in health care decisions? Comparing preferences for individual and collective involvement in England and Sweden.谁希望参与医疗保健决策?比较英国和瑞典对个人参与和集体参与的偏好。
BMC Public Health. 2017 Jul 14;18(1):18. doi: 10.1186/s12889-017-4534-y.

移民和少数族裔参与孕产妇护理:一项叙述性综述。

Involvement in maternal care by migrants and ethnic minorities: a narrative review.

作者信息

De Freitas Cláudia, Massag Janka, Amorim Mariana, Fraga Sílvia

机构信息

1EPIUnit - Instituto de Saúde Pública, Universidade do Porto, Rua das Taipas, 135, 4050-600 Porto, Portugal.

2Departamento de Ciências da Saúde Pública e Forenses e Educação Médica, Faculdade de Medicina, Universidade do Porto, Porto, Portugal.

出版信息

Public Health Rev. 2020 Apr 7;41:5. doi: 10.1186/s40985-020-00121-w. eCollection 2020.

DOI:10.1186/s40985-020-00121-w
PMID:32280558
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7137324/
Abstract

BACKGROUND

Guidelines for improving the quality of maternal health services emphasise women's involvement in care. However, evidence about migrant and ethnic minorities' preferences for participation in maternal care remains unsystematised. Understanding these populations' experiences with and preferred forms of involvement in care provision is crucial for imbuing policies and guidelines with sensitivity to diversity and for implementing people-centred care. This paper presents a narrative synthesis of empirical studies of involvement in maternal health care by migrants and ethnic minorities based on four key dimensions: information, communication, expression of preferences and decision-making.

METHODS

Studies indexed in PubMed and Scopus published until December 2019 were searched. Original quantitative, qualitative and mixed methods studies written in English and reporting on migrant and ethnic minority involvement in maternal care were included. Backward reference tracking was carried out. Three researchers conducted full-text review of selected publications.

RESULTS

In total, 22 studies met the inclusion criteria. The majority of studies were comparative and addressed only one or two dimensions of involvement, with an emphasis on the information and communication dimensions. Compared to natives, migrants and ethnic minorities were more likely to (1) lack access to adequate information as a result of health care staff's limited time, knowledge and misconceptions about women's needs and preferences; (2) report suboptimal communication with care staff caused by language barriers and inadequate interpreting services; (3) be offered fewer opportunities to express preferences and to have preferences be taken less into account; and (4) be less involved in decisions about their care due to difficulties in understanding information, socio-cultural beliefs and previous experiences with care provision less attuned with playing an active role in decision-making and care staff detracting attitudes.

CONCLUSION

Constraints to adequate and inclusive involvement in maternal care can hinder access to quality care and result in severe negative health outcomes for migrant and ethnic minority women. More research is needed into how to tailor the dimensions of involvement to migrant and ethnic minorities' needs and preferences, followed by provision of the resources necessary for effective implementation (e.g. sufficient time for consultations, optimal interpreter systems, health care staff training).

摘要

背景

改善孕产妇保健服务质量的指南强调妇女参与护理。然而,关于移民和少数民族对参与孕产妇护理的偏好的证据仍未系统化。了解这些人群在护理提供方面的经历以及他们偏好的参与形式,对于使政策和指南具有对多样性的敏感性以及实施以人为本的护理至关重要。本文基于信息、沟通、偏好表达和决策这四个关键维度,对移民和少数民族参与孕产妇保健的实证研究进行了叙述性综合分析。

方法

检索了截至2019年12月在PubMed和Scopus上索引的研究。纳入了以英文撰写的、报告移民和少数民族参与孕产妇护理情况的原始定量、定性和混合方法研究。进行了向后参考文献追踪。三位研究人员对选定的出版物进行了全文审查。

结果

共有22项研究符合纳入标准。大多数研究是比较性的,仅涉及参与的一两个维度,重点是信息和沟通维度。与本地人相比,移民和少数民族更有可能:(1) 由于医护人员时间有限、知识不足以及对妇女需求和偏好的误解,而无法获得足够的信息;(2) 报告由于语言障碍和口译服务不足而与护理人员的沟通不理想;(3) 表达偏好的机会较少,且偏好较少被考虑;(4) 由于理解信息困难、社会文化信仰以及以往护理经历与在决策中发挥积极作用不太协调,且护理人员态度不友好,而较少参与有关其护理的决策。

结论

在孕产妇护理中充分和包容性参与的限制可能会阻碍获得高质量护理,并给移民和少数民族妇女带来严重的负面健康后果。需要更多研究如何根据移民和少数民族的需求和偏好调整参与维度,随后提供有效实施所需的资源(例如充足的咨询时间、最佳口译系统、医护人员培训)。