Division of Health Research, Lancaster University, Lancaster, LA1, UK.
Division of Health Research, Lancaster University, Lancaster, LA1, UK.
Patient Educ Couns. 2020 Sep;103(9):1709-1723. doi: 10.1016/j.pec.2020.03.023. Epub 2020 Apr 2.
Delivering a life changing diagnosis can be a distressing experience for patients and a challenging task for professionals. Diagnosis delivery can be especially difficult for individuals with neurodegenerative diseases such as motor neurone disease (MND), multiple sclerosis (MS) and Parkinson's disease (PD). This review aims to scope the literature on doctors' and patients' perspectives on diagnosis delivery for these conditions in order to enhance our understanding in this area and identify potential research gaps.
A scoping review methodology was used, and data were summarised using content analysis.
47 studies fulfilled the inclusion criteria. Studies showed that although patients were generally satisfied with diagnosis delivery, a considerable proportion was still dissatisfied with aspects of the consultation, especially the information and time provided and the doctor's approach. Only six studies addressed doctors' perspectives, which focused more on doctors' practice.
There was a significant research gap in professionals' perspectives. The review also found that although basic standards of good practice were being met, a significant proportion of patients were dissatisfied with diagnosis communication.
Professionals delivering such diagnoses need to assess and respond to patients' information needs, provide time for questions and maintain an empathic attitude.
为患者做出改变人生的诊断可能是一种痛苦的体验，对专业人士来说也是一项具有挑战性的任务。对于患有神经退行性疾病（如肌萎缩侧索硬化症、多发性硬化症和帕金森病）的个体来说，诊断的传达可能尤其困难。本综述旨在概述关于医生和患者对这些疾病诊断传达的观点的文献，以增进我们对这一领域的理解并确定潜在的研究差距。
采用范围综述方法，使用内容分析法对数据进行总结。
47 项研究符合纳入标准。研究表明，尽管患者通常对诊断传达感到满意，但仍有相当一部分患者对咨询的某些方面不满意，尤其是信息和时间的提供以及医生的态度。只有六项研究涉及医生的观点，这些研究主要集中在医生的实践上。
专业人士观点存在重大研究差距。该综述还发现，尽管基本的良好实践标准得到了满足，但仍有相当一部分患者对诊断沟通不满意。
传达此类诊断的专业人员需要评估和回应患者的信息需求，为患者提问提供时间，并保持同理心。
