Beesley Vanessa L, Turner Jane, Chan Raymond J, Yates Patsy, Gordon Louisa G, Burge Matthew, Eastgate Melissa A, Staneva Aleksandra A, Northfield Sarah, Beebe Hanna, Wyld David K, Neale Rachel E
Population Health Department, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Nursing and Institute of Health and Biomedical Innovation, Queensland University of Technology, Brisbane, Australia.
Faculty of Medicine, University of Queensland, Brisbane, Australia.
Eur J Oncol Nurs. 2020 Feb 8;46:101729. doi: 10.1016/j.ejon.2020.101729.
Patients with pancreatic cancer have extremely high unmet psychological and physical needs. Family carers of these patients have even higher levels of distress than patients. Our purpose was to assess the feasibility and acceptability of a counselling intervention in patients diagnosed with pancreatic cancer and their carers.
We conducted a single-arm feasibility study of the PREPARES (Patients and RElatives affected by PAncreatic cancer: Referral, Education and Support) pilot intervention. Patient and carer participants received up to nine counselling sessions delivered by a trained nurse via telephone and/or telehealth technology. The intervention, informed by self-efficacy theory, involved components to assess and address care needs, and provide feedback to clinicians. Feasibility was measured using participation and retention rates. Participants completed semi-structured interviews at the end of the intervention about acceptability. These were analysed using thematic analysis.
Twelve people participated: five patients and seven carers (38% and 50% participation rates respectively). Most participants (eight) completed all nine counselling sessions; two chose to receive fewer sessions and two were discontinued requiring more intensive psychiatric support. The intervention was highly acceptable. Participants unanimously preferred the telephone over video-conferencing and to receive counselling separately from their carer/patient. The main perceived benefits were emotional support, the nurse-counsellors' knowledge, care coordination and personalised care. Suggested improvements included a welcome pack about their nurse-counsellor and that sessions should continue beyond nine sessions if required.
The PREPARES intervention was feasible and highly acceptable. This low-cost intervention provided much-needed support to people affected by this devastating disease.
胰腺癌患者有着极高的未被满足的心理和生理需求。这些患者的家庭照顾者的痛苦程度甚至高于患者。我们的目的是评估针对被诊断为胰腺癌的患者及其照顾者的咨询干预措施的可行性和可接受性。
我们对PREPARES（受胰腺癌影响的患者和亲属：转诊、教育与支持）试点干预措施进行了单臂可行性研究。患者和照顾者参与者接受了由一名经过培训的护士通过电话和/或远程医疗技术提供的多达九次咨询服务。该干预措施以自我效能理论为依据，包括评估和满足护理需求以及向临床医生提供反馈的组成部分。通过参与率和保留率来衡量可行性。参与者在干预结束时完成了关于可接受性的半结构化访谈。使用主题分析法对这些访谈进行了分析。
12人参与：5名患者和7名照顾者（参与率分别为38%和50%）。大多数参与者（8人）完成了所有九次咨询服务；2人选择接受较少的咨询服务，2人因需要更强化的精神支持而中断。该干预措施非常容易被接受。参与者一致更喜欢通过电话而非视频会议接受咨询，并且更喜欢与他们的照顾者/患者分开接受咨询。主要的感知益处包括情感支持、护士咨询师的知识、护理协调和个性化护理。建议的改进措施包括提供一份关于他们的护士咨询师的欢迎资料包，并且如果有需要，咨询服务应持续超过九次。
PREPARES干预措施是可行的且非常容易被接受。这种低成本的干预措施为受这种毁灭性疾病影响的人们提供了急需的支持。
