Department of Social Work, Alan Gilbert Building, The University of Melbourne, Victoria, Australia; Deakin University, Building W, 221 Burwood Hwy, Burwood, Victoria, Australia.
School of Nursing and Midwifery, Centre of Quality and Safe Patient Research, Deakin University, Geelong, Victoria, Australia.
J Pediatr Nurs. 2020 Jul-Aug;53:29-35. doi: 10.1016/j.pedn.2020.04.006. Epub 2020 Apr 25.
Perinatal and neonatal palliative care guidelines recommend the provision of photographs and other mementos as an element of care for parents bereaved by neonatal loss. However, little is known about parents' perceptions of such bereavement interventions. This study explored the significance of memory-making for bereaved parents and the impact of memory-making on parents' experience of loss following neonatal loss.
We conducted semi-structured interviews with 18 bereaved parents. A grounded theory approach informed by Corbin and Strauss was used to underpin data sampling, data collection and data analysis. A constant comparative approach was used to engage in open, axial and selective coding to distil parents' stories into categories supporting a core concept.
"Creating evidence" emerged as a key theme in the grounded theory of memory-making in bereavement care for parents following neonatal loss. Creating evidence involved taking photographs, creating mementos, as well as involving friends and family during the baby's time in the Neonatal Unit.
Creating evidence affirmed the life of the baby and the role of the parents. Creating evidence was a significant element of memory-making that had a positive impact on parents' experience of bereavement.
Parents should be supported to create evidence of their baby's life, through taking photos, creating mementos, and involving others in their baby's care. Such interventions provide affirmation of the baby's life and of the individual's role as a parent.
围产期和新生儿姑息治疗指南建议提供照片和其他纪念品作为父母丧亲后护理的一个组成部分。然而，对于父母对这种丧亲干预的看法知之甚少。本研究探讨了为丧亲父母制作记忆的意义，以及制作记忆对父母在新生儿丧失后经历丧失的影响。
我们对 18 名丧亲父母进行了半结构化访谈。扎根理论方法得到了 Corbin 和 Strauss 的支持，为数据抽样、数据收集和数据分析提供了信息。采用恒定比较方法进行开放式、轴向式和选择性编码，将父母的故事提炼成支持核心概念的类别。
“创造证据”是新生儿丧失后丧亲护理中父母制作记忆的扎根理论中的一个关键主题。创造证据包括拍照、制作纪念品，以及在婴儿在新生儿病房期间让朋友和家人参与。
创造证据肯定了婴儿的生命和父母的角色。创造证据是制作记忆的一个重要组成部分，对父母的丧亲体验有积极影响。
应支持父母通过拍照、制作纪念品以及让他人参与照顾婴儿来创造其婴儿生命的证据。这些干预措施提供了对婴儿生命和个人作为父母的角色的肯定。
