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重新构想围产期姑息治疗:在不确定性面前,支持扮演更广泛的角色。

Reimagining Perinatal Palliative Care: A Broader Role for Support in the Face of Uncertainty.

机构信息

Division of Paediatric Medicine, Hospital for Sick Children, Toronto, Canada.

Paediatric Advanced Care Team, Hospital for Sick Children, Toronto, Canada.

出版信息

J Palliat Care. 2022 Oct;37(4):476-479. doi: 10.1177/08258597221098496. Epub 2022 Jun 3.

DOI:10.1177/08258597221098496
PMID:35657323
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9465549/
Abstract

Perinatal medicine is confronted by a growing number of complex fetal conditions that can be diagnosed prenatally. The evolution of potentially life-prolonging interventions for the baby before and after birth contributes to prognostic uncertainty. For clinicians who counsel families in these circumstances, determining which ones might benefit from early palliative care referral can be challenging. We assert that all women carrying a fetus diagnosed with a life-threatening condition for which comfort-focused care at birth is one ethically reasonable option ought to be offered palliative care support prenatally, regardless of the chosen plan of care. Early palliative care support can contribute to informed decision making, enhance psychological and grief support, and provide opportunities for care planning that includes ways to respect and honor the life of the fetus or baby, however long it may be.

摘要

围产医学面临着越来越多的复杂胎儿疾病,可以在产前进行诊断。在出生前和出生后为婴儿延长生命的潜在干预措施的发展增加了预后的不确定性。对于在这种情况下为家庭提供咨询的临床医生来说,确定哪些家庭可能受益于早期姑息治疗转诊可能具有挑战性。我们断言,所有携带胎儿的女性,这些胎儿被诊断患有危及生命的疾病,出生时以舒适为中心的护理是一种合理的选择,都应该在产前获得姑息治疗支持,而不论所选择的护理计划如何。早期姑息治疗支持可以帮助做出明智的决策,增强心理和悲伤支持,并提供护理计划的机会,包括尊重和尊重胎儿或婴儿生命的方式,无论其生命有多长。

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本文引用的文献

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Front Pediatr. 2020 Oct 30;8:588432. doi: 10.3389/fped.2020.588432. eCollection 2020.
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Virtual visits in palliative care: about time or against the grain?虚拟探访在姑息治疗中的应用:顺应潮流还是违背常理?
BMJ Support Palliat Care. 2020 Sep;10(3):331-336. doi: 10.1136/bmjspcare-2020-002498. Epub 2020 Jul 17.
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Close to Home: Perinatal Palliative Care in a Community Hospital.《近在咫尺:社区医院的围产期姑息治疗》。
Adv Neonatal Care. 2020 Jun;20(3):196-203. doi: 10.1097/ANC.0000000000000732.
4
Creating Evidence: Findings from a Grounded Theory of Memory-Making in Neonatal Bereavement Care in Australia.创建证据:澳大利亚新生儿丧亲护理中记忆形成的扎根理论研究结果。
J Pediatr Nurs. 2020 Jul-Aug;53:29-35. doi: 10.1016/j.pedn.2020.04.006. Epub 2020 Apr 25.
5
African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study.非裔美国人和拉丁裔丧亲父母接受围产期姑息治疗后的健康结果:一项比较混合方法的案例研究。
Appl Nurs Res. 2019 Dec;50:151200. doi: 10.1016/j.apnr.2019.151200. Epub 2019 Oct 25.
6
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