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临床医生与服务使用者对多发性硬化症管理的看法:愉悦、目的、实践

A Clinician and Service User's Perspective on Managing MS: Pleasure, Purpose, Practice.

作者信息

Hunter Rachael

机构信息

Department of Psychology, Swansea University, Swansea, United Kingdom.

出版信息

Front Psychol. 2020 Apr 23;11:709. doi: 10.3389/fpsyg.2020.00709. eCollection 2020.

DOI:10.3389/fpsyg.2020.00709
PMID:32390911
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7191068/
Abstract

There is a growing body of evidence that points to an important role for modification of lifestyle factors and promotion of health-related quality of life in the secondary prevention of disease progression in multiple sclerosis (D'Hooghe et al., 2010; Weiland et al., 2014; Hadgkiss et al., 2015). As a clinical psychologist diagnosed with multiple sclerosis in 2012 I have gained a unique insight into ways in which people living with MS and clinicians can usefully integrate evidence-based lifestyle modifications that enhance self-efficacy and self-management to improve wider psychological and physical health. The framework presented here enables clinicians to engage in salutogenic health promotion by placing value upon the importance of healthy, evidence-based behavior change. Furthermore, the framework provides a structure which can empower and provide guidance for people living with MS on what and how to implement and sustain behavior change and emotional wellbeing in the face of this life-changing diagnosis.

摘要

越来越多的证据表明,在多发性硬化症疾病进展的二级预防中,改变生活方式因素以及提升与健康相关的生活质量发挥着重要作用(德霍赫等人,2010年;韦兰等人,2014年;哈德基斯等人,2015年)。作为一名在2012年被诊断出患有多发性硬化症的临床心理学家,我对多发性硬化症患者和临床医生如何有效地整合基于证据的生活方式改变有了独特的见解,这些改变能够增强自我效能感和自我管理能力,从而改善更广泛的心理和身体健康。这里提出的框架使临床医生能够通过重视健康的、基于证据的行为改变的重要性来开展促进健康的活动。此外,该框架提供了一种结构,能够赋予多发性硬化症患者力量,并为他们提供指导,使其明白面对这一改变人生的诊断时,应该实施和维持哪些行为改变以及如何实现情绪健康。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3139/7191068/da6d60b59bfe/fpsyg-11-00709-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3139/7191068/da6d60b59bfe/fpsyg-11-00709-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3139/7191068/da6d60b59bfe/fpsyg-11-00709-g001.jpg

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本文引用的文献

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The Effects of Dietary Improvement on Symptoms of Depression and Anxiety: A Meta-Analysis of Randomized Controlled Trials.饮食改善对抑郁和焦虑症状的影响:随机对照试验的荟萃分析。
Psychosom Med. 2019 Apr;81(3):265-280. doi: 10.1097/PSY.0000000000000673.
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Physical activity and mental health - Author's reply.身体活动与心理健康——作者回复
Lancet Psychiatry. 2018 Nov;5(11):874. doi: 10.1016/S2215-0366(18)30354-7. Epub 2018 Sep 21.
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Temporal trends in multiple sclerosis prevalence and incidence in a large population.大人群中多发性硬化症患病率和发病率的时间趋势。
Neurology. 2018 Apr 17;90(16):e1435-e1441. doi: 10.1212/WNL.0000000000005331. Epub 2018 Mar 16.
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A survey of dietary characteristics in a large population of people with multiple sclerosis.对大量多发性硬化症患者饮食特征的调查。
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Diet quality is associated with disability and symptom severity in multiple sclerosis.饮食质量与多发性硬化症的残疾和症状严重程度有关。
Neurology. 2018 Jan 2;90(1):e1-e11. doi: 10.1212/WNL.0000000000004768. Epub 2017 Dec 6.
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MS Research Australia Progress in MS Research 2017.澳大利亚多发性硬化症研究 2017 年多发性硬化症研究进展
Mult Scler. 2017 Nov;23(13):NP1-NP29. doi: 10.1177/1352458517734699. Epub 2017 Oct 10.
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From psychological moments to mortality: A multidisciplinary synthesis on heart rate variability spanning the continuum of time.从心理瞬间到死亡率:跨越时间连续体的心率变异性的多学科综合研究
Neurosci Biobehav Rev. 2017 Dec;83:547-567. doi: 10.1016/j.neubiorev.2017.09.006. Epub 2017 Sep 6.
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When are we going to take modifiable risk factors more seriously in multiple sclerosis?在多发性硬化症中,我们何时才能更认真地对待可改变的风险因素?
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