Dauz Williams Phoebe, Piamjariyakul Ubolrat, Graff J Carolyn, Stanton Anne, Guthrie Anne C, Hafeman Carol, Williams Arthur R
University of Kansas School of Nursing, Kansas City, Kansas 66160, USA.
Issues Compr Pediatr Nurs. 2010;33(1):39-55. doi: 10.3109/01460860903486515.
Forty studies performed between 1970 and 1995 indicated that 60% of parents with children with developmental disabilities reported manifestations of increased risk or negative effects on the well siblings.
A secondary data analysis was performed using qualitative data gathered during the baseline of a randomized controlled clinical trial of an intervention for siblings/families of children with long-term conditions, including developmental disabilities. Content analysis was used to identify themes from responses of 151 parents to an open-ended question on their perceptions of the effects on well siblings of living at home with a brother/sister with developmental disabilities.
Of 363 themes identified, 61.1% reflected negative manifestations of increased risk in well siblings; 1.7% indicated no risk; and 37.2% reflected positive outcomes, suggesting the continued need for potential interventions.
Contemporary family life in these families, as portrayed by parents' descriptions, reflects need in child health care for more intervention research on this vulnerable population.
1970年至1995年间进行的40项研究表明，60%有发育障碍儿童的父母报告称，家中健康的兄弟姐妹出现风险增加或负面影响的表现。
对一项针对患有长期疾病（包括发育障碍）儿童的兄弟姐妹/家庭的干预措施的随机对照临床试验基线期间收集的定性数据进行二次数据分析。内容分析用于从151名父母对一个开放式问题的回答中识别主题，该问题是关于他们对与患有发育障碍的兄弟姐妹在家中生活对健康的兄弟姐妹的影响的看法。
在识别出的363个主题中，61.1%反映了健康的兄弟姐妹风险增加的负面表现；1.7%表明无风险；37.2%反映了积极结果，这表明仍需要进行潜在的干预措施。
从父母的描述来看，这些家庭的当代家庭生活反映出儿童保健领域需要针对这一弱势群体开展更多干预研究。
