Williams Phoebe Dauz, Williams Arthur R, Graff J Carolyn, Hanson Sandra, Stanton Anne, Hafeman Carol, Liebergen Adrienne, Leuenberg Karla, Setter Robyn Karlin, Ridder Lavonne, Curry Heather, Barnard Martha, Sanders Susan
University of Kansas School of Nursing; University of Kansas Medical Center, Kansas City, Kansas.
J Pediatr. 2003 Sep;143(3):386-93. doi: 10.1067/S0022-3476(03)00391-3.
Siblings of children with chronic illness or disability have been reported to have a 1.6 to 2.0 risk for behavioral and mental health problems. Our objective was to examine the effects of an intervention for siblings (age 7-15 years) of children with chronic illness or disability.
A randomized, three-group repeated-measures design was used: full intervention (n=79), partial intervention (n=71), and a waiting list control group (n=102). Outcomes were sibling knowledge about illness, behavior problems, social support, self-esteem, attitude, and mood measured over four postintervention periods. Covariates were family cohesion, maternal mood, socioeconomic status, and well sibling age. The full intervention included structured teaching and psychosocial sessions at a 5-day residential summer camp. The partial intervention included camp only. Treatment effects were estimated by using generalized estimating equation panel analyses.
The full treatment group showed significant improvements on all six outcomes over most periods, the partial treatment group on three outcomes, and the control group on two outcomes. Improvements in outcomes ranged from 5% to 25% increases over baseline measures.
A dose-response relationship to intervention was found. Treatment gains were sustained over a period of 12 months.
据报道，患有慢性疾病或残疾儿童的兄弟姐妹出现行为和心理健康问题的风险为1.6至2.0。我们的目的是研究针对患有慢性疾病或残疾儿童的兄弟姐妹（7至15岁）进行干预的效果。
采用随机、三组重复测量设计：全面干预组（n = 79）、部分干预组（n = 71）和候补对照组（n = 102）。在干预后的四个阶段测量结果，包括兄弟姐妹对疾病的了解、行为问题、社会支持、自尊、态度和情绪。协变量包括家庭凝聚力、母亲情绪、社会经济地位和健康兄弟姐妹的年龄。全面干预包括在为期5天的住宿夏令营中进行结构化教学和心理社会课程。部分干预仅包括夏令营。通过使用广义估计方程面板分析来估计治疗效果。
在大多数阶段，全面治疗组在所有六个结果上均有显著改善，部分治疗组在三个结果上有改善，对照组在两个结果上有改善。结果的改善幅度比基线测量值增加了5%至25%。
发现干预存在剂量反应关系。治疗效果在12个月内得以维持。
