Lancaster University, Lancaster, United Kingdom.
Qual Health Res. 2020 Oct;30(12):1888-1898. doi: 10.1177/1049732320917927. Epub 2020 May 12.
In this article, we critically reflect upon the experience of public health research involving children and contribute to existing conversations about the methodological and ethical facets of research in this field. Drawing on two phases of a study that sought to explore the lived experiences of families with young children who have had a recent common childhood illness (gastrointestinal infection), we address the research process, from inception of the studies, to fieldwork and the resultant material obtained. We argue that when researching with families about a child-centered experience, it is important to look beyond the individual adult as "participant" and to conceptualize dependents either as, or "like" participants-what we suggest as a "family-centered approach." Theoretically, this strategy best addresses the lived reality of relationality and responsibility of parent/carers for dependent children; while improving the ease and safety of data collection for the researcher and participants alike.
在本文中,我们批判性地反思了涉及儿童的公共卫生研究经验,并为该领域研究的方法和伦理方面的现有对话做出了贡献。本文借鉴了一项旨在探索近期经历常见儿童疾病(胃肠道感染)的家庭生活经历的研究的两个阶段,探讨了从研究开始到实地工作以及获得的结果材料的研究过程。我们认为,当针对儿童为中心的体验进行研究时,重要的是不仅要将个体成人视为“参与者”,还要将受抚养人视为或“像”参与者——我们称之为“以家庭为中心的方法”。从理论上讲,这种策略最能解决父母/照顾者对受抚养子女的关系和责任的现实生活;同时提高了研究人员和参与者收集数据的便利性和安全性。