• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

相似文献

1
"We're Talking About You, Not to You": Methodological Reflections on Public Health Research With Families With Young Children.“与你交谈,而非告知你”:针对有年幼子女的家庭开展公共卫生研究的方法学反思。
Qual Health Res. 2020 Oct;30(12):1888-1898. doi: 10.1177/1049732320917927. Epub 2020 May 12.
2
Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home.带着痛苦与充实生活:家中有使用呼吸机辅助的孩子的家庭的道德体验。
Pediatrics. 2006 Jan;117(1):e48-60. doi: 10.1542/peds.2005-0789.
3
CORRIGENDUM to "We're talking about you, not to you": Methodological reflections on public health research with families with young children.《“我们谈论的是你,而非与你交谈”的勘误》:对针对幼儿家庭开展的公共卫生研究的方法学思考
Qual Health Res. 2020 Oct;30(12):1978. doi: 10.1177/1049732320941325. Epub 2020 Jul 8.
4
Experiences of parents and carers in managing asthma in children: a qualitative systematic review.父母及照顾者管理儿童哮喘的经验:一项定性系统评价
JBI Database System Rev Implement Rep. 2019 May;17(5):793-984. doi: 10.11124/JBISRIR-2017-004019.
5
Families' experiences of living with pediatric epilepsy: A qualitative systematic review.家庭与小儿癫痫共处的经历:一项定性系统综述。
Epilepsy Behav. 2016 Jul;60:225-237. doi: 10.1016/j.yebeh.2016.04.034. Epub 2016 May 28.
6
The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review.儿童或青少年癌症诊断后一年内家庭成员的经历:一项定性系统综述
JBI Database System Rev Implement Rep. 2015 Jun 12;13(5):293-329. doi: 10.11124/jbisrir-2015-1698.
7
Talking to children about parental mental illness: The experiences of well parents.与儿童谈论父母的精神疾病:健康父母的经验。
Int J Soc Psychiatry. 2018 Jun;64(4):367-373. doi: 10.1177/0020764018763687. Epub 2018 Mar 14.
8
Family pediatrics: report of the Task Force on the Family.家庭儿科学:家庭问题特别工作组报告
Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.
9
The best possible start: A qualitative study on the experiences of parents of young children with or at risk for fetal alcohol spectrum disorders.最佳起点:一项关于有或有胎儿酒精谱系障碍风险的幼儿的父母的经验的定性研究。
Res Dev Disabil. 2020 Feb;97:103558. doi: 10.1016/j.ridd.2019.103558. Epub 2019 Dec 26.
10
Supporting children and young people to assume responsibility from their parents for the self-management of their long-term condition: An integrative review.支持儿童和年轻人从父母手中接过长期疾病自我管理的责任:一项综合综述。
Child Care Health Dev. 2019 Mar;45(2):175-188. doi: 10.1111/cch.12645.

引用本文的文献

1
Accessing the Lived Experiences of Children with Illness in Sweden for Health Care Research.获取瑞典患病儿童的生活经历以用于医疗保健研究。
Children (Basel). 2024 Dec 1;11(12):1477. doi: 10.3390/children11121477.
2
Giving voice to children in research: The power of child-centered constructivist grounded theory methodology.让儿童在研究中发声:以儿童为中心的建构主义扎根理论方法的力量。
Res Nurs Health. 2022 Aug;45(4):488-497. doi: 10.1002/nur.22231. Epub 2022 Apr 28.

本文引用的文献

1
Studying Children's Experiences in Interactions With Clinicians: Identifying Methods Fit for Purpose.研究儿童与临床医生互动中的体验:确定适合目的的方法。
Qual Health Res. 2019 Feb;29(3):393-403. doi: 10.1177/1049732318801358. Epub 2018 Oct 1.
2
The Dominant Obesity Discourse Versus Children's Conceptualizations of Health: A Comparison Through Dialogue and Drawings.主流肥胖话语与儿童健康观念的对比:通过对话和绘画的比较。
Qual Health Res. 2018 Jun;28(7):1157-1170. doi: 10.1177/1049732318764396. Epub 2018 Mar 26.
3
The emotional challenges of conducting in-depth research into significant health issues in health geography: reflections on emotional labour, fieldwork and life course.健康地理学中对重大健康问题进行深入研究的情感挑战:关于情感劳动、实地调查和生命历程的思考
Area (Oxf). 2017 Dec;49(4):436-442. doi: 10.1111/area.12347. Epub 2017 May 9.
4
From tokenism to meaningful engagement: best practices in patient involvement in an EU project.从表面文章到有意义的参与:患者参与欧盟项目的最佳实践
Res Involv Engagem. 2015 Jun 25;1:5. doi: 10.1186/s40900-015-0004-9. eCollection 2015.
5
Socioeconomic status and infectious intestinal disease in the community: a longitudinal study (IID2 study).社会经济地位与社区感染性肠道疾病:一项纵向研究(IID2 研究)。
Eur J Public Health. 2018 Feb 1;28(1):134-138. doi: 10.1093/eurpub/ckx091.
6
Tokenism in patient engagement.患者参与中的表面应付行为
Fam Pract. 2017 Jun 1;34(3):290-295. doi: 10.1093/fampra/cmw097.
7
Research with children and young people: not on them.针对儿童和年轻人的研究:不是以他们为研究对象。
Arch Dis Child. 2016 Dec;101(12):1086-1089. doi: 10.1136/archdischild-2015-309292. Epub 2016 May 4.
8
Social work and adverse childhood experiences research: implications for practice and health policy.社会工作与不良儿童经历研究:对实践和健康政策的启示。
Soc Work Public Health. 2014;29(1):1-16. doi: 10.1080/19371918.2011.619433.
9
Researching children's health experiences: The place for participatory, child-centered, arts-based approaches.研究儿童健康体验:参与式、以儿童为中心、以艺术为基础方法的应用之地。
Res Nurs Health. 2013 Feb;36(1):95-107. doi: 10.1002/nur.21517. Epub 2012 Nov 28.
10
Dealing with chaos and complexity: the reality of interviewing children and families in their own homes.应对混乱与复杂情况:在儿童及其家庭家中进行访谈的实际情况。
J Clin Nurs. 2008 Dec;17(23):3123-30. doi: 10.1111/j.1365-2702.2008.02495.x.

“与你交谈,而非告知你”:针对有年幼子女的家庭开展公共卫生研究的方法学反思。

"We're Talking About You, Not to You": Methodological Reflections on Public Health Research With Families With Young Children.

机构信息

Lancaster University, Lancaster, United Kingdom.

出版信息

Qual Health Res. 2020 Oct;30(12):1888-1898. doi: 10.1177/1049732320917927. Epub 2020 May 12.

DOI:10.1177/1049732320917927
PMID:32396056
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7905741/
Abstract

In this article, we critically reflect upon the experience of public health research involving children and contribute to existing conversations about the methodological and ethical facets of research in this field. Drawing on two phases of a study that sought to explore the lived experiences of families with young children who have had a recent common childhood illness (gastrointestinal infection), we address the research process, from inception of the studies, to fieldwork and the resultant material obtained. We argue that when researching with families about a child-centered experience, it is important to look beyond the individual adult as "participant" and to conceptualize dependents either as, or "like" participants-what we suggest as a "family-centered approach." Theoretically, this strategy best addresses the lived reality of relationality and responsibility of parent/carers for dependent children; while improving the ease and safety of data collection for the researcher and participants alike.

摘要

在本文中,我们批判性地反思了涉及儿童的公共卫生研究经验,并为该领域研究的方法和伦理方面的现有对话做出了贡献。本文借鉴了一项旨在探索近期经历常见儿童疾病(胃肠道感染)的家庭生活经历的研究的两个阶段,探讨了从研究开始到实地工作以及获得的结果材料的研究过程。我们认为,当针对儿童为中心的体验进行研究时,重要的是不仅要将个体成人视为“参与者”,还要将受抚养人视为或“像”参与者——我们称之为“以家庭为中心的方法”。从理论上讲,这种策略最能解决父母/照顾者对受抚养子女的关系和责任的现实生活;同时提高了研究人员和参与者收集数据的便利性和安全性。