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Symptom assessment in hypereosinophilic syndrome: Toward development of a patient-reported outcomes tool.高嗜酸性粒细胞综合征的症状评估:致力于开发一种患者报告结局工具。
J Allergy Clin Immunol Pract. 2020 Oct;8(9):3209-3212.e8. doi: 10.1016/j.jaip.2020.04.069. Epub 2020 May 15.
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Benralizumab in Severe and Refractory PDGFRA-Negative Hypereosinophilic Syndrome.贝那利珠单抗治疗严重难治性血小板衍生生长因子受体A阴性高嗜酸性粒细胞综合征
J Clin Immunol. 2021 Apr;41(3):688-690. doi: 10.1007/s10875-020-00946-9. Epub 2021 Jan 4.
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[Eosinophilic ascites as a presenting symptom of the hypereosinophilic syndrome].[嗜酸性粒细胞性腹水作为高嗜酸性粒细胞综合征的首发症状]
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[Primary hypereosinophilic syndrome].[原发性嗜酸性粒细胞增多综合征]
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Hypereosinophilic syndrome in childhood: clinical and molecular features of two cases.儿童高嗜酸性粒细胞综合征:两例临床及分子特征
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A case of hypereosinophilic syndrome with Loeffler endocarditis successfully bridged to heart transplantation by biventricular mechanical support.一例伴有吕弗勒心内膜炎的嗜酸性粒细胞增多综合征患者通过双心室机械支持成功过渡到心脏移植。
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An unusual presentation of idiopathic hypereosinophilic syndrome.特发性嗜酸性粒细胞增多综合征的一种不寻常表现。
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Ocular involvement in idiopathic hypereosinophilic syndrome: a rare finding.
Klin Monbl Augenheilkd. 2012 Apr;229(4):437-8. doi: 10.1055/s-0031-1299176. Epub 2012 Apr 11.

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Biologic therapy in rare eosinophil-associated disorders: remaining questions and translational research opportunities.生物疗法在罕见的嗜酸性粒细胞相关疾病中的应用:尚存问题与转化研究机遇。
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HES and EGPA: Two Sides of the Same Coin.HES 和 EGPA:一枚硬币的两面。
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Mepolizumab therapy improves the most bothersome symptoms in patients with hypereosinophilic syndrome.美泊利珠单抗治疗可改善高嗜酸性粒细胞综合征患者最困扰的症状。
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Characterization of disease flares and impact of mepolizumab in patients with hypereosinophilic syndrome.嗜酸性粒细胞增多综合征患者疾病发作的特征及美泊利珠单抗的影响。
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Hypereosinophilic syndrome with multiorgan involvement: an interdisciplinary work-up.伴有多器官受累的嗜酸性粒细胞综合征:一项跨学科的检查。
BMJ Case Rep. 2021 Feb 4;14(2):e240243. doi: 10.1136/bcr-2020-240243.

本文引用的文献

1
Patient-Reported Outcomes in Systemic Lupus Erythematosus.系统性红斑狼疮患者报告的结局
Rheum Dis Clin North Am. 2016 May;42(2):253-263. doi: 10.1016/j.rdc.2016.01.001. Epub 2016 Mar 17.
2
Development and validation of a symptom-based activity index for adults with eosinophilic esophagitis.嗜酸性食管炎成人患者基于症状的活动指数的开发与验证
Gastroenterology. 2014 Dec;147(6):1255-66.e21. doi: 10.1053/j.gastro.2014.08.028. Epub 2014 Aug 23.
3
Content validity--establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO good research practices task force report: part 1--eliciting concepts for a new PRO instrument.内容效度——在新开发的用于医疗产品评估的患者报告结局(PRO)工具中建立和报告证据:ISPOR PRO 良好研究实践工作组报告:第 1 部分——为新 PRO 工具征集概念。
Value Health. 2011 Dec;14(8):967-77. doi: 10.1016/j.jval.2011.06.014. Epub 2011 Oct 13.
4
Heterogeneity among characteristics of hypereosinophilic syndromes.高嗜酸性粒细胞综合征特征的异质性。
J Allergy Clin Immunol. 2010 Jun;125(6):1399-1401.e2. doi: 10.1016/j.jaci.2010.02.024. Epub 2010 Apr 14.
5
Hypereosinophilic syndrome: a multicenter, retrospective analysis of clinical characteristics and response to therapy.嗜酸性粒细胞增多综合征:一项多中心回顾性分析临床特征和治疗反应。
J Allergy Clin Immunol. 2009 Dec;124(6):1319-25.e3. doi: 10.1016/j.jaci.2009.09.022.
6
The hypereosinophilic syndrome: analysis of fourteen cases with review of the literature.高嗜酸性粒细胞综合征:14例病例分析并文献复习
Medicine (Baltimore). 1975 Jan;54(1):1-27.

Symptom assessment in hypereosinophilic syndrome: Toward development of a patient-reported outcomes tool.

作者信息

Kovacs Nicholas, Benjamin Katy, Holland-Thomas Nicole, Moshkovich Olga, Nelsen Linda M, Ortega Hector, Schwartz Ethan J, Steinfeld Jonathan, Kirby Suyong Yun, Klion Amy, Khoury Paneez

机构信息

Laboratory of Parasitic Diseases, National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, Md; National Jewish Health, Denver, Colo.

ICON, Gaithersburg, Md.

出版信息

J Allergy Clin Immunol Pract. 2020 Oct;8(9):3209-3212.e8. doi: 10.1016/j.jaip.2020.04.069. Epub 2020 May 15.

DOI:10.1016/j.jaip.2020.04.069
PMID:32416262
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7554136/
Abstract
摘要