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照顾者对管饲中真实食物的看法:一项加拿大调查。

Caregivers' Perceptions of Real-Food Containing Tube Feeding: A Canadian Survey.

机构信息

Medical Affairs Manager, Nestlé Health Science, North York, ON.

Medical Scientific Regulatory Unit, Nestlé Health Science, North York, ON.

出版信息

Can J Diet Pract Res. 2020 Dec 1;81(4):193-197. doi: 10.3148/cjdpr-2020-012. Epub 2020 Jun 4.

DOI:10.3148/cjdpr-2020-012
PMID:32495643
Abstract

Caregivers of children requiring tube feeding show growing interest in real-food containing formula, including home-blenderized tube feeding (HBTF) and commercial real-food containing formulas (CRFCF). This study aimed to understand caregivers' perceptions of both. Caregivers using real-food containing tube feeding were recruited through the Feeding Tube Awareness Foundation Facebook group. A 13-question online survey asked about use of HBTF and CRFCF, beliefs about their choices, and what resources guided formula use. Forty-one completed the survey, with mean child age of 7 years. Overall, 54% (n = 22) used HBTF formulas, 34% (n = 14) CRFCF, and 12% (n = 5) used both. For 70% (n = 29), presence of whole foods, nutritional completeness, and natural ingredients were most important. Challenges with CRFCF use included lack of variety (n = 10, 53%) and cost (n = 9, 47%). HBTF challenges were difficulty preparing away from home (n = 19, 70%) and need for special blenders (n = 15, 56%). Participants believed CRFCF are convenient (n = 35, 85%) and nutritionally consistent (n = 25, 61%), but do not contain enough real-food ingredients (n = 26, 63%). Facebook or other social media was the most valued resource guiding formula use (n = 25, 61%). Caregivers desire formulas that are nutritionally complete and made of whole foods. CRFCF offers convenience and consistency, yet caregivers prefer more real-food ingredients.

摘要

需要管饲喂养的儿童的照护者对含有真正食物的配方越来越感兴趣,包括家庭搅拌管饲喂养(HBTF)和商业含有真正食物的配方(CRFCF)。本研究旨在了解照护者对这两种方法的看法。通过 Feeding Tube Awareness Foundation Facebook 群组招募使用含有真正食物的管饲喂养的照护者。一份 13 个问题的在线调查询问了 HBTF 和 CRFCF 的使用情况、对其选择的信念以及指导配方使用的资源。41 人完成了调查,儿童平均年龄为 7 岁。总体而言,54%(n=22)使用 HBTF 配方,34%(n=14)使用 CRFCF,12%(n=5)使用两种配方。对于 70%(n=29)的人来说,含有真正食物、营养全面和天然成分最为重要。使用 CRFCF 的挑战包括缺乏多样性(n=10,53%)和成本(n=9,47%)。HBTF 的挑战是在家外准备困难(n=19,70%)和需要特殊搅拌机(n=15,56%)。参与者认为 CRFCF 使用方便(n=35,85%)且营养一致(n=25,61%),但含有真正食物成分不足(n=26,63%)。Facebook 或其他社交媒体是指导配方使用的最有价值的资源(n=25,61%)。照护者希望配方营养全面,且含有真正食物。CRFCF 提供便利和一致性,但照护者更喜欢含有更多真正食物成分的配方。

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Paediatr Child Health. 2021 Jun 28;26(8):462-469. doi: 10.1093/pch/pxab034. eCollection 2021 Dec.