Dietetics Department, Sydney Children's Hospital Network, Westmead, NSW, Australia.
Rehab Department, Sydney Children's Hospital Network, Westmead, NSW, Australia.
Nutr Clin Pract. 2020 Jun;35(3):471-478. doi: 10.1002/ncp.10368. Epub 2019 Jul 7.
Families choose pureed blenderized tube feeds (BTFs) over commercial formulas for several reasons, including the ability to provide foods with natural composition, improvements in physiological outcomes, intimate experiences for parental nurturing, and the benefits that come with family inclusion and mealtime engagement. Although dietetic associations cannot, as yet, recommend BTFs, many families still choose to commence them. We aimed to better understand the demographics of these families, their sources of information and support, and the perceived benefits in a community setting to tailor the support we provide these families.
Dietitians at a pediatric hospital in Sydney identified 21 children receiving BTFs. Questionnaires that focused on child/parent demographics, parental knowledge, dietetic support, and symptoms before and after commencing BTFs were distributed. Food diaries were also sent.
Twelve respondents returned completed surveys. Thematic analysis indicated improvements in general health, emotional and social well-being, and gastrointestinal symptoms. Respondents reported challenges with food preparation, nutrition adequacy, food storage, and prevention of tube blockages. Respondents primarily sought information online from social media and support groups. Likert scale analysis demonstrated positive outcomes for children receiving BTFs. Improvements were noted in general health, growth, nausea/vomiting, reflux, constipation, diarrhea, and social inclusion. Tube blockage was reported, however, and only changed from "never" to "rarely a problem." Food diaries were not detailed enough for analysis.
Families continue to choose BTFs and report a range of benefits, accessing much of their information online. Health professionals should recognize this and openly provide support, guidance, and monitoring as appropriate.
由于多种原因，包括提供天然成分食物的能力、改善生理结果、提供父母养育的亲密体验以及家庭参与和用餐时间的好处，家庭选择泥状搅拌机管饲（BTF）而不是商业配方。尽管饮食协会还不能推荐 BTF，但许多家庭仍然选择开始使用。我们的目的是更好地了解这些家庭的人口统计学特征、他们的信息和支持来源，以及在社区环境中感知到的好处，以便为这些家庭提供定制化的支持。
悉尼一家儿科医院的营养师确定了 21 名接受 BTF 的儿童。分发了重点关注儿童/家长人口统计学、家长知识、饮食支持以及开始 BTF 前后症状的问卷。还发送了食物日记。
12 名受访者返回了完整的调查问卷。主题分析表明，一般健康、情绪和社会幸福感以及胃肠道症状有所改善。受访者报告了在食物准备、营养充足性、食物储存和预防管堵塞方面的挑战。受访者主要从社交媒体和支持小组在线获取信息。李克特量表分析表明接受 BTF 的儿童有积极的结果。一般健康、生长、恶心/呕吐、反流、便秘、腹泻和社会包容方面都有所改善。然而，报告了管堵塞，只是从不常发生问题变为很少发生问题。食物日记不够详细，无法进行分析。
家庭继续选择 BTF，并报告了一系列好处，大部分信息都是在线获取的。卫生专业人员应该认识到这一点，并根据需要提供公开的支持、指导和监测。
