Almeida Bethania de Araujo, Doneda Danilo, Ichihara Maria Yury, Barral-Netto Manoel, Matta Gustavo Correa, Rabello Elaine Teixeira, Gouveia Fabio Castro, Barreto Mauricio
Centro de Integração de Dados e Conhecimentos para Saúde, Fiocruz Bahia. R. Mundo, Trobogy. 41745-715 Salvador BA Brasil.
Instituto Brasiliense de Direito Público. Brasília DF Brasil.
Cien Saude Colet. 2020 Jun;25(suppl 1):2487-2492. doi: 10.1590/1413-81232020256.1.11792020. Epub 2020 May 1.
Data has become increasingly important and valuable for both scientists and health authorities searching for answers to the COVID-19 crisis. Due to difficulties in diagnosing this infection in populations around the world, initiatives supported by digital technologies are being developed by governments and private companies to enable the tracking of the public's symptoms, contacts and movements. Considering the current scenario, initiatives designed to support infection surveillance and monitoring are essential and necessary. Nonetheless, ethical, legal and technical questions abound regarding the amount and types of personal data being collected, processed, shared and used in the name of public health, as well as the concomitant or posterior use of this data. These challenges demonstrate the need for new models of responsible and transparent data and technology governance in efforts to control SARS-COV2, as well as in future public health emergencies.
对于正在寻找新冠疫情危机答案的科学家和卫生当局而言，数据变得愈发重要且有价值。由于在全球范围内对人群进行这种感染的诊断存在困难，政府和私营公司正在开展由数字技术支持的举措，以实现对公众症状、接触情况和行动轨迹的追踪。考虑到当前的情形，旨在支持感染监测的举措至关重要且必不可少。尽管如此，在以公共卫生之名收集、处理、共享和使用的个人数据的数量和类型，以及这些数据的同步或后续使用方面，存在诸多伦理、法律和技术问题。这些挑战表明，在控制新冠病毒以及未来应对突发公共卫生事件时，需要新的负责且透明的数据与技术治理模式。
