EngageMinds HUB - Consumer, Food & Health Engagement Research Center, Department of Psychology, Università Cattolica del Sacro Cuore - Milano, Italy.
Faculty of Agriculture, Food and Environmental Sciences, Università Cattolica del Sacro Cuore, Piacenza, Italy.
J Diabetes Res. 2020 May 20;2020:5419298. doi: 10.1155/2020/5419298. eCollection 2020.
Diabetes mellitus is a widely diffused chronic condition which impacts on several aspects of patients' lives. In the current clinical practice, the implementation in the clinical routine of monitoring systems of patients' outcomes has led to an increased generation and use of several measures for the assessment of patients' quality of life (QOL). Nevertheless, this construct appears to be particularly complex, and its operationalization is variable across different measures. The purpose of this paper is to offer an updated review of the diabetes-specific QOL measures present in scientific literature with a specific focus on the broad domains assessed.
A scoping review was carried out with the purpose of identifying the existing measures in literature and describing their implicit representation of QOL in diabetes care. Five different databases (Scopus; Web of Science Core Collection; Medline; PsycInfo; and Cochrane Central Register of Controlled Trials) were searched with a string including validation studies of adult-only, diabetes-specific QOL measures. Each measure was then qualified according to its structure, a qualitative assessment of the broad domains of QOL it comprises, and finally an overview of the psychometric properties of its first validation.
30 scales were identified and assessed. Theme analysis shows that QOL is operationalized with multidimensional surveys comprising of both mental, physical, and social health components. Some scales also consider the impact of societal attitudes, public policies, and context on QOL.
Several self-report measures of QOL specifically developed for diabetic patients exist in scientific literature. The present scoping review reports scales structure, broad domains of QOL, and development purpose. This may help in understanding the concept of QOL in diabetic patients and may also serve the purpose of guiding the reader in the choice of the most appropriate instrument or in the development of a new one.
糖尿病是一种广泛传播的慢性疾病，会影响患者生活的多个方面。在当前的临床实践中，将患者结果监测系统纳入临床常规，导致了对患者生活质量（QOL）评估的多种措施的增加和使用。然而，这一概念似乎特别复杂，其在不同措施中的操作性也各不相同。本文旨在提供对科学文献中糖尿病特定 QOL 措施的最新综述，特别关注评估的广泛领域。
进行了范围综述，目的是确定文献中现有的措施，并描述其在糖尿病护理中对 QOL 的隐含表示。使用包括成人专用、糖尿病特定 QOL 措施验证研究的字符串，在五个不同的数据库（Scopus；Web of Science 核心合集；Medline；PsycInfo；和 Cochrane 对照试验中心注册）中进行了搜索。然后根据结构、涵盖的 QOL 广泛领域的定性评估以及其首次验证的心理测量特性概述对每个措施进行了分类。
确定并评估了 30 个量表。主题分析表明，QOL 通过多维调查来操作，这些调查包括心理健康、身体健康和社会健康等方面。一些量表还考虑了社会态度、公共政策和环境对 QOL 的影响。
科学文献中存在几种专为糖尿病患者开发的特定 QOL 自评量表。本范围综述报告了量表的结构、QOL 的广泛领域和开发目的。这有助于理解糖尿病患者的 QOL 概念，也有助于指导读者选择最合适的工具或开发新工具。
