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研究伦理与原住民:返还雅诺马米人血样的反响。

Research ethics and Indigenous Peoples: Repercussions of returning Yanomami blood samples.

出版信息

Dev World Bioeth. 2020 Dec;20(4):209-215. doi: 10.1111/dewb.12264. Epub 2020 Jun 23.

Abstract

This work presents the case of the Yanomami indigenous people from Brazil that were the object of US ethnography initiated in the 1960s. The research brought harmful repercussions to the life of the Indigenous people of Brazil for several decades, and it took more than 40 years until the beginning of a process of reparation involving the Brazilian government and American universities. Objective: to discuss the meaning of the return of Yanomami blood samples, as well as contributions from the epistemologies of traditional Indigenous knowledge to the debate about research ethics and the structuring of means for the social control of researchers and the protection of participants in scientific studies, having as an example the Yanomami indigenous people from Brazil, subjected to noxious ethnography in the 1960s and the 1970s. This work used data reports recorded in secondary sources. In this article we argue that Bioethics needs to further diversify its epistemological foundations and to consider epistemologies and cosmologies beyond the frontiers of Western science, as the case of the abusive research involving the Yanomami indigenous people in Brazil reveals. We argue that traditional knowledge, such as those of indigenous and quilombolas, with their epistemologies and cosmologies, are fundamental for the election of less colonized and more efficient principles of research ethics, regarding the protection of the participants' rights in scientific studies. Traditional indigenous populations can teach us a great deal about doing research.

摘要

这部分工作介绍了巴西雅诺马米土著民族的情况,他们是 20 世纪 60 年代美国民族志学研究的对象。这项研究给巴西的土著人民带来了几十年的负面影响,直到巴西政府和美国大学开始了一个长达 40 多年的赔偿过程。目的:讨论雅诺马米血样返还的意义,以及传统土著知识的认识论对研究伦理和研究人员社会控制手段以及保护科学研究参与者的争论的贡献,以巴西雅诺马米土著人民为例,他们在 20 世纪 60 年代和 70 年代遭受了有害的民族志学研究。这项工作使用了从二手资料中记录的数据报告。本文认为,生物伦理学需要进一步使其认识论基础多样化,并考虑到西方科学之外的认识论和宇宙论,因为巴西雅诺马米土著人民的这种滥用研究揭示了这一点。我们认为,传统知识,如土著和夸雷姆博拉人的知识,及其认识论和宇宙论,对于选择更不容易被殖民化和更有效的研究伦理原则至关重要,这涉及到保护科学研究参与者的权利。传统的土著群体可以教会我们很多关于做研究的知识。

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