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葡萄牙普通公众和医疗保健专业人员对姑息治疗的认知和误解。

Knowledge and Myths about Palliative Care among the General Public and Health Care Professionals in Portugal.

机构信息

School of Health Sciences of Polytechnic Institute of Leiria (IPLeiria), Campus2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria Leiria, Portugal.

Centre for Innovative Care and Health Technology (ciTechCare), Rua de Santo André-66-68, Campus 5, Politécnico de Leiria, 2410-541 Leiria, Portugal.

出版信息

Int J Environ Res Public Health. 2020 Jun 27;17(13):4630. doi: 10.3390/ijerph17134630.

Abstract

International research has shown that healthcare professionals (HCPs) and nonhealthcare professionals (NHCPs) are unaware of the goals and purposes of palliative care. This study evaluates the knowledge of palliative care among a sample of Portuguese adults and correlates their level of knowledge with age, gender, profession, and experience of family member's palliative care. A cross-sectional online survey was carried out on a sample of 152 HCPs and 440 NHCPs who completed an anonymous questionnaire of sociodemographic, family, and professional data, and an instrument of 26 dichotomous (true or false) questions focusing on palliative care goals and purposes. The 592 participants had a mean age of 31.3 ± 11.1 years, and most were female. Statistically significant differences between statements considered as correct by HCPs and NHCPs were found in 24 statements; HCPs had the highest percentage of correct answers. The terms most frequently associated with palliative care mentioned by NHCPs were chronic and progressive disease (n = 76), while HCPs mostly mentioned quality-of-life promotion (n = 29). Women, the elderly, and HCPs had a higher level of knowledge regarding palliative care ( < 0.001). : Results clearly show gaps in knowledge of palliative care, especially among NHCPs. An integrated approach is needed to inform and clarify the philosophy and goals of palliative care in different settings in order to improve knowledge.

摘要

国际研究表明,医疗保健专业人员(HCPs)和非医疗保健专业人员(NHCPs)对姑息治疗的目标和目的并不了解。本研究评估了葡萄牙成年人对姑息治疗的知识水平,并将其知识水平与年龄、性别、职业以及家庭成员姑息治疗的经验相关联。 一项横断面在线调查对 152 名 HCP 和 440 名 NHCP 进行了调查,他们完成了一份匿名问卷,内容涉及社会人口学、家庭和专业数据,以及一份包含 26 个二分法(正确或错误)问题的工具,重点关注姑息治疗的目标和目的。 592 名参与者的平均年龄为 31.3 ± 11.1 岁,大多数为女性。在 HCP 和 NHCP 认为正确的陈述中,发现有 24 个陈述存在统计学差异;HCP 的正确答案比例最高。NHCP 提到的与姑息治疗最相关的术语是慢性和进行性疾病(n = 76),而 HCP 主要提到的是提高生活质量(n = 29)。女性、老年人和 HCP 对姑息治疗的知识水平较高(<0.001)。 结果清楚地表明姑息治疗知识存在差距,尤其是在 NHCP 中。需要采取综合方法在不同环境中告知和澄清姑息治疗的理念和目标,以提高知识水平。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f7af/7369792/243fa9a00862/ijerph-17-04630-g001.jpg

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