Rudberg Ann-Sofie, Berge Eivind, Laska Ann-Charlotte, Jutterström Stina, Näsman Per, Sunnerhagen Katharina S, Lundström Erik
Department of Clinical Neuroscience, Karolinska Institutet , Stockholm, Sweden.
Department of Neurology, Danderyd Hospital , Stockholm, Sweden.
Top Stroke Rehabil. 2021 Mar;28(2):153-158. doi: 10.1080/10749357.2020.1789829. Epub 2020 Jul 5.
Stroke has transitioned from an untreatable, unpreventable disease to a highly treatable and preventable disease over recent decades, and the number of stroke survivors is expected to increase. The number is also foreseen to grow larger as a result of an aging population. With an escalating number of stroke survivors, research on how to improve life after stroke is needed.
The primary aim was to determine which area of research related to life after stroke that stroke patients and their informal carers prioritized as being relevant and valuable.
A cross-sectional study of all patients who had completed the 12 months of follow-up in the EFFECTS trial. In the questionnaire the stroke patients and their informal carers were asked to prioritize areas of research they considered important and valuable with respect to their life after stroke.
Of the 731 patients who were still alive after the 12 months-follow-up, 589 responded. The most prioritized areas of research were (290 (49%) responders) and (173 (29%) responders). Women answered the undefined alternative "" more often than men (43 women (11%) versus 11 men (6%), = .04). Younger patients prioritized to a higher extent (88 (45%) versus (22%), < .001), and elderly prioritized (214 (54%) versus 76 (40%), = .002) and (38 (10%) versus 9 (5%), = .045).
Life after stroke is perceived differentely with aging. Future research should address strategies to face challenges such as imbalance and walking difficulties and post-stroke-fatigue.
在最近几十年里，中风已从一种无法治疗、无法预防的疾病转变为一种高度可治疗和可预防的疾病，中风幸存者的数量预计将会增加。由于人口老龄化，这一数字预计还会进一步增长。随着中风幸存者数量的不断增加，需要开展关于如何改善中风后生活的研究。
主要目的是确定中风患者及其非正式照料者认为与中风后生活相关且有价值的研究领域。
对在EFFECTS试验中完成12个月随访的所有患者进行横断面研究。在问卷中，中风患者及其非正式照料者被要求对他们认为对中风后生活重要且有价值的研究领域进行排序。
在12个月随访后仍存活的731名患者中，有589人做出了回应。最受关注的研究领域是（290名（49%）回应者）和（173名（29%）回应者）。女性选择未明确界定的选项“”的频率高于男性（43名女性（11%）对11名男性（6%），=0.04）。较年轻的患者更倾向于（88名（45%）对（22%），<0.001），而老年人更倾向于（214名（54%）对76名（40%），=0.002）和（38名（10%）对9名（5%），=0.045）。
随着年龄增长，人们对中风后生活的认知有所不同。未来的研究应探讨应对诸如平衡和行走困难以及中风后疲劳等挑战的策略。
