Micklewright Kerry, Farquhar Morag
School of Health Sciences, University of East Anglia, Norwich, UK.
Palliat Med. 2020 Dec;34(10):1305-1315. doi: 10.1177/0269216320939243. Epub 2020 Jul 16.
Informal carers play a key supportive role for patients with chronic obstructive pulmonary disease. However, caring can have a considerable impact on health and wellbeing. Carers may have unidentified support needs that could be a target for intervention. Literature on the support needs of informal carers has not been fully synthesised, and our knowledge of the comprehensiveness of the Carer Support Needs Assessment Tool for these individuals is limited.
To explore whether the Carer Support Needs Assessment Tool covers the support needs of carers of patients with chronic obstructive pulmonary disease identified in published literature.
English language studies were identified against predetermined inclusion/exclusion criteria through database searching. Further studies were identified through searching reference lists and citations of included papers. Papers were critically appraised and data extracted and synthesised by two reviewers. Identified needs were mapped to Carer Support Needs Assessment Tool questions.
MEDLINE, CINAHL, EMBASE, CDSR, ASSIA, PsycINFO and Scopus databases (Jan 1997-Dec 2017).
Twenty-four studies were included. Results suggest that carers have support needs in a range of domains including physical, social, psychological and spiritual. Many of these needs are unmet. Particular areas of concern relate to prolonged social isolation, accessing services, emotional support and information needs. Findings also suggest amendment of the Carer Support Needs Assessment Tool may be required relating to difficulties within relationship management.
Evidence suggests that carers of patients with chronic obstructive pulmonary disease would benefit from identification and response to their support needs by healthcare professionals but to enable this, the Carer Support Needs Assessment Tool requires an additional question. Future planned work will explore this with carers of patients with chronic obstructive pulmonary disease.
非正式护理人员对慢性阻塞性肺疾病患者起着关键的支持作用。然而，护理工作可能会对健康和幸福产生相当大的影响。护理人员可能存在未被识别的支持需求，这些需求可以成为干预的目标。关于非正式护理人员支持需求的文献尚未得到充分综合，而且我们对这些人的护理人员支持需求评估工具的全面性了解有限。
探讨护理人员支持需求评估工具是否涵盖已发表文献中确定的慢性阻塞性肺疾病患者护理人员的支持需求。
通过数据库搜索，根据预先确定的纳入/排除标准识别英文研究。通过搜索纳入论文的参考文献列表和引用文献来识别更多研究。由两名评审员对论文进行严格评估，并提取和综合数据。将确定的需求映射到护理人员支持需求评估工具的问题上。
MEDLINE、CINAHL、EMBASE、CDSR、ASSIA、PsycINFO和Scopus数据库（1997年1月至2017年12月）。
纳入了24项研究。结果表明，护理人员在身体、社会、心理和精神等一系列领域存在支持需求。其中许多需求未得到满足。特别令人关注的领域包括长期的社会隔离、获得服务、情感支持和信息需求。研究结果还表明，可能需要对护理人员支持需求评估工具进行修订，以解决关系管理方面的困难。
有证据表明，慢性阻塞性肺疾病患者的护理人员将受益于医疗保健专业人员识别并回应他们的支持需求，但要实现这一点，护理人员支持需求评估工具需要增加一个问题。未来计划开展的工作将与慢性阻塞性肺疾病患者的护理人员探讨这一问题。
