Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
Int J Qual Stud Health Well-being. 2021 Dec;16(1):1994804. doi: 10.1080/17482631.2021.1994804.
Informal carers have an important role in society through their care and support of their long-term ill relatives. Providing informal care is challenging and can lead to caregiver burden; moreover, many support needs of the carers are not met, leading to confusion, disappointment and frustration. We conducted an interview study to clarify the meaning of support given and received by informal carers to relatives with chronic obstructive pulmonary disease or chronic heart failure.
We purposively selected and recruited informants via participants in another study, thereby conducting interviews over the phone from June 2016 to May 2017. In total, we conducted 14 interviews with 12 informants. All interviews were transcribed verbatim and the content was analysed using a phenomenological hermeneutical approach.
Our comprehensive understanding of the meaning of support for these carers is twofold: it is a self-evident struggle for the good life of their relatives and that they want to be . The healthcare system must recognize the efforts of carers and include them in the strategic planning and operational stages of care and treatment for people with long-term illness.
通过对长期患病亲属的照顾和支持，非专业护工在社会中扮演着重要的角色。提供非专业护理具有挑战性，可能导致护工负担过重；此外，许多护工的支持需求得不到满足，导致他们感到困惑、失望和沮丧。我们进行了一项访谈研究，以阐明非专业护工为慢性阻塞性肺疾病或慢性心力衰竭患者提供和接受的支持的含义。
我们通过另一项研究的参与者有针对性地选择和招募了受访者，因此在 2016 年 6 月至 2017 年 5 月期间通过电话进行了访谈。我们共对 12 名受访者中的 14 人进行了访谈。所有访谈都进行了逐字转录，并使用现象学解释学方法对内容进行了分析。
我们对这些护工支持含义的全面理解是双重的：这是他们为亲属的美好生活而进行的不言而喻的斗争，也是他们想要成为的人。医疗保健系统必须认识到护工的努力，并将他们纳入长期疾病患者的护理和治疗的战略规划和运营阶段。
