Speight Nigel
Paediatrician, Southlands, Gilesgate, Durham DH1 1QN, UK.
Healthcare (Basel). 2020 Jul 14;8(3):211. doi: 10.3390/healthcare8030211.
A current problem regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is the large proportion of doctors that are either not trained or refuse to recognize ME/CFS as a genuine clinical entity, and as a result do not diagnose it. An additional problem is that most of the clinical and research studies currently available on ME are focused on patients who are ambulant and able to attend clinics and there is very limited data on patients who are very severe (housebound or bedbound), despite the fact that they constitute an estimated 25% of all ME/CFS cases. This author has personal experience of managing and advising on numerous cases of severe paediatric ME, and offers a series of case reports of individual cases as a means of illustrating various points regarding clinical presentation, together with general principles of appropriate management.
当前，关于肌痛性脑脊髓炎/慢性疲劳综合征（ME/CFS）的一个问题是，很大一部分医生要么未接受过相关培训，要么拒绝将ME/CFS视为一种真正的临床病症，因此无法对其进行诊断。另一个问题是，目前关于ME的大多数临床和研究都集中在能够行走并前往诊所就诊的患者身上，而对于病情非常严重（居家或卧床）的患者，相关数据非常有限，尽管据估计这部分患者占所有ME/CFS病例的25%。本文作者有管理众多严重儿童ME病例并提供相关建议的个人经验，并提供了一系列个别病例报告，以说明临床表现的各个要点以及适当管理的一般原则。
