Newton Faith R
Department of Education, Delaware State University, Dover, DE 19901, USA.
Healthcare (Basel). 2021 May 25;9(6):627. doi: 10.3390/healthcare9060627.
Children with ME/CFS who are severely ill are bedbound and homebound, and oftentimes also wheelchair-dependent. Very seriously affected children are often too sick for doctor's office visits, let alone school attendance. The most recent data estimate that 2-5% of children may be severely affected or bedridden. However, there is no recent research that confirms these numbers. The severely ill receive little help from their schools, and are socially isolated. This article outlines several suggestions for the type of education that students with ME/CFS should be receiving and develops a preliminary sketch of the web of resources and emergent techniques necessary to achieve these outcomes.
患有肌痛性脑脊髓炎/慢性疲劳综合征（ME/CFS）的重病儿童卧床不起，只能待在家里，而且往往还需要依赖轮椅。受影响非常严重的儿童常常病得无法去医生办公室就诊，更不用说上学了。最新数据估计，2%至5%的儿童可能受到严重影响或卧床不起。然而，最近没有研究证实这些数字。重病儿童从学校得到的帮助很少，而且在社交上也很孤立。本文概述了对于ME/CFS学生应接受的教育类型的若干建议，并勾勒出实现这些成果所需的资源网络和新兴技术的初步框架。
