From the Department of Physical Medicine and Rehabilitation, Medical College of Wisconsin, Milwaukee, Wisconsin (MI, KZ, RP, DWB); Marquette University Program in Exercise Science, Milwaukee, Wisconsin (AVN); University of Wisconsin Milwaukee, Joseph J. Zilber School of Public Health, Milwaukee, Wisconsin (AFY); Milwaukee County Office for Persons with Disabilities, Milwaukee, Wisconsin (MB); Curative Care Network, Milwaukee, Wisconsin (DF-P); Coordinated Education Service Agency, Milwaukee, Wisconsin (CS); and Office for Resource Center Development, Milwaukee, Wisconsin (MS).
Am J Phys Med Rehabil. 2021 Jun 1;100(6):592-598. doi: 10.1097/PHM.0000000000001533.
The aims of the study were to gain a better understanding of the resources, barriers, and facilitators of participation in adaptive sport and recreational activities as a means of achieving physical activity recommendations in individuals with disability and to understand preferences for a patient navigator service to help mitigate the barriers.
Clinical, academic, and community stakeholders applied a community-engaged research approach to develop online surveys and focus group questions for adults with a disability or parents of a child with a disability to meet study objectives.
One hundred ninety-eight adults and 146 parents completed the online surveys. Sixteen adults and 18 parents took part in focus groups. Many participants lacked knowledge of available adaptive sport and recreational resources; other barriers were expense, limited number of trained volunteers, and need for instruction. Conversely, persons were facilitated by community, socialization, and words of encouragement/motivation. Participants strongly preferred a patient navigator to be a person active in adaptive sport and recreational or an informative resource-filled website.
Our findings suggest that physical activity programs including adaptive sport and recreational should be designed to offer people with disabilities opportunities to build social networks and strengthen social support. A patient navigator service could help increase participation in adaptive sport and recreational and physical activity within a community context.
本研究旨在更好地了解参与适应性运动和娱乐活动的资源、障碍和促进因素，以实现残疾人群体的身体活动建议，并了解对患者导航员服务的偏好，以帮助减轻障碍。
临床、学术和社区利益相关者采用社区参与式研究方法，为残疾成年人或残疾儿童的父母开发在线调查和焦点小组问题，以实现研究目标。
198 名成年人和 146 名父母完成了在线调查。16 名成年人和 18 名父母参加了焦点小组。许多参与者缺乏对现有适应性运动和娱乐资源的了解；其他障碍包括费用、训练有素的志愿者人数有限以及需要指导。相反，社区、社交和鼓励/激励的话语促进了人们的参与。参与者强烈倾向于让积极参与适应性运动和娱乐或提供丰富信息资源的人担任患者导航员。
我们的研究结果表明，包括适应性运动和娱乐在内的身体活动项目应旨在为残疾人提供建立社交网络和加强社会支持的机会。患者导航员服务可以帮助提高社区环境中适应性运动和娱乐及身体活动的参与度。
