Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, Maryland.
Department of Pediatrics, Medical College of Wisconsin, Milwaukee, Wisconsin.
Pediatr Blood Cancer. 2020 Sep;67(9):e28586. doi: 10.1002/pbc.28586. Epub 2020 Jul 18.
Fifteen evidence-based Standards of psychosocial care for children with cancer and their families have been established. Despite the importance of implementing the standards, significant barriers and challenges exist. In order to overcome barriers to implementation and assess the level of current psychosocial care, a model of evaluating psychosocial care (Matrix) and a set of pathways toward achieving optimal care (Guidelines) were developed. This special report describes the process involved in the creation of standard templates and development of content based on rigorous reviews from multidisciplinary psychosocial experts, focus groups, and multiple revisions based on further expert review. The resulting Matrix and Guidelines are included as Supplemental Information.
已经制定了 15 项基于证据的儿童癌症患者及其家庭的心理社会护理标准。尽管实施这些标准非常重要,但仍然存在着重大的障碍和挑战。为了克服实施的障碍并评估当前心理社会护理的水平,开发了一种评估心理社会护理的模型(矩阵)和一套实现最佳护理的途径(指南)。本特别报告描述了基于多学科心理社会专家的严格审查、焦点小组以及基于进一步专家审查的多次修订来创建标准模板和开发内容的过程。由此产生的矩阵和指南作为补充信息包含在内。