National Cancer Institute, Bethesda, Maryland, USA.
A.I. Du Pont Hospital for Children, Wilmington, Delaware, USA.
Psychooncology. 2020 Dec;29(12):2033-2040. doi: 10.1002/pon.5505. Epub 2020 Oct 21.
To describe innovative models of psychosocial care delivery that align with published Standards of Psychosocial Care of Children with Cancer and their Families, in efforts to bridge the divide between research and practice.
The Mattie Miracle Cancer Foundation, in partnership with the American Psychosocial Oncology Society reviewed 22 letters of intent and 13 full grants and awarded small grants to researchers with high quality projects that aimed to implement any of the published 15 Standards of Care. For three of the highest rated funded research projects, we describe the Standard implemented, the novel research design and implementation strategies, and how the research findings might inform the development, implementation, and dissemination of effective solutions for bridging Standard-to-practice gaps.
The first study presented is an innovative eHealth intervention for parents of children with cancer designed to improve family functioning and decrease symptoms of acute distress, anxiety, and posttraumatic stress. The second study addresses the acceptability and feasibility of using daily text message assessments of oral chemotherapy adherence in adolescents and young adults with leukemia, and the third creates a blueprint for providing psychosocial services to siblings, including ways to overcome common implementation barriers.
Several themes emerged from the studies presented, including (1) attention to barriers to previous attempts at implementation; (2) technology's role in delivering care; (3) the need for stakeholder involvement; and (4) consideration for multi-pronged solutions that address heterogeneity in care settings. Next steps for integrating the Standards of Psychosocial Care into clinical practice are discussed.
描述与已发布的《儿童癌症及其家庭心理社会照护标准》相一致的心理社会照护提供模式的创新，努力弥合研究与实践之间的差距。
Mattie Miracle 癌症基金会与美国心理肿瘤学会合作，对 22 份意向书和 13 份完整资助申请进行了审查，并向高质量项目的研究人员授予小额资助，这些项目旨在实施已发布的 15 项护理标准中的任何一项。对于三个评价最高的资助研究项目，我们描述了实施的标准、新颖的研究设计和实施策略，以及研究结果如何为开发、实施和传播有效的解决方案提供信息，以弥合标准与实践之间的差距。
首先介绍的是一项针对癌症患儿父母的创新电子健康干预措施，旨在改善家庭功能，减轻急性困扰、焦虑和创伤后应激症状。第二项研究探讨了在青少年和年轻白血病患者中使用每日短信评估口服化疗依从性的可接受性和可行性，第三项研究为为兄弟姐妹提供心理社会服务制定了蓝图，包括克服常见实施障碍的方法。
从提出的研究中出现了几个主题，包括（1）关注以前实施尝试的障碍；（2）技术在提供护理方面的作用；（3）利益相关者参与的必要性；（4）考虑多管齐下的解决方案，以解决护理环境中的异质性。讨论了将《心理社会照护标准》整合到临床实践中的下一步措施。
