School of Nursing and Rehabilitation, Cheeloo College of Medicine, Shandong University, Jinan, Shandong, 250012, People's Republic of China.
Peking Union Medical College Hospital, Beijing, 100730, People's Republic of China.
Int J Chron Obstruct Pulmon Dis. 2021 Aug 4;16:2245-2255. doi: 10.2147/COPD.S311772. eCollection 2021.
Caregivers of COPD patients experience various caregiving burden, which is related to their quality of life. We aimed to explicitly explore whether social support and negative coping styles play the chain mediating roles in the relationship between the caregiving burden of caregivers of COPD patients and their health-related quality of life.
We conducted a multicenter cross-sectional survey in four hospitals using a convenience sample. Participants who met the inclusion criteria completed five relevant scales, including a sociodemographic scale. One-way ANOVA and Pearson's method were used to analyze the data accordingly, and chain mediated effect values were estimated by bootstrap method to determine whether the model holds.
Among the 201 caregivers who participated in this study, the mean age was 55.94 years, most of them were female (61.2%), the mean caregiving burden score was 52.39 ± 14.65, and the quality of life score was 37.97 ± 3.55. Among them, age, gender, education, relationship with the patient, and the number of chronic diseases were the main factors affecting the quality of life score of the caregivers. According to Pearson results, there was a negative correlation between quality of life and caregiving burden, and negative coping styles. The model result showed that caregiving burden could directly and negatively predict quality of life, and also predict quality of life through the chain mediation of social support and negative coping styles.
In China, caregivers of patients with COPD experience severe levels of caregiving burden and low quality of life. The combination of adequate perceived social support and lower negative coping can be effective in alleviating caregiving burden and improving their quality of life. Therefore, healthcare professionals should provide targeted guidance to caregivers with the help of social support and interventions that regulate negative coping styles.
COPD 患者的照顾者经历各种照顾负担，这与他们的生活质量有关。我们旨在明确探讨社会支持和消极应对方式是否在 COPD 患者照顾者的照顾负担与他们的健康相关生活质量之间的关系中起连锁中介作用。
我们使用便利样本在四家医院进行了一项多中心横断面调查。符合纳入标准的参与者完成了五个相关量表，包括一个社会人口统计学量表。我们使用单向方差分析和 Pearson 方法对数据进行了相应的分析，并通过自举法估计连锁中介效应值，以确定模型是否成立。
在 201 名参与研究的照顾者中，平均年龄为 55.94 岁，大多数为女性（61.2%），平均照顾负担评分为 52.39 ± 14.65，生活质量评分为 37.97 ± 3.55。其中，年龄、性别、教育程度、与患者的关系和慢性病数量是影响照顾者生活质量评分的主要因素。根据 Pearson 结果，生活质量与照顾负担和消极应对方式呈负相关。模型结果表明，照顾负担可以直接和负向预测生活质量，也可以通过社会支持和消极应对方式的连锁中介预测生活质量。
在中国，COPD 患者的照顾者经历着严重的照顾负担和低生活质量。充分的感知社会支持和较低的消极应对方式的结合，可以有效地减轻照顾负担，提高他们的生活质量。因此，医疗保健专业人员应该在社会支持的帮助下，为照顾者提供有针对性的指导，并采取干预措施来调节消极应对方式。
