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脑癌患者及其照料者的宗教/精神层面的关切

Religious/spiritual concerns of patients with brain cancer and their caregivers.

作者信息

Sprik Petra J, Tata Beba, Kelly Brian, Fitchett George

机构信息

Levine Cancer Institute, Charlotte, NC, USA. Email:

Mayo Clinic, Rochester, MN, USA.

出版信息

Ann Palliat Med. 2021 Jan;10(1):964-969. doi: 10.21037/apm-20-813. Epub 2020 Sep 3.

Abstract

Research conducted over the last 20 years supports that many patients with cancer engage religion and spirituality (R/S) when coping with their illness. Research on patients with brain cancer is more minimal but mirrors the same findings. This article provides a brief overview of the research about R/S and coping among cancer patients, then summarizes the research about R/S among patients with brain cancer and their caregivers. The following topics are discussed: (I) the importance of R/S to patients with brain cancer and their caregivers, (II) specific R/S needs experienced by patients with brain cancer and their caregivers over the cancer continuum, (III) R/S coping mechanisms engaged by brain cancer patients and their caregivers, and (IV) the healthcare systems' engagement of R/S needs within the healthcare setting. This is followed by professional chaplains' descriptions of their own experience with R/S concerns of patients with brain cancer and their caregivers, and the spiritual care they have offered them. Hear My Voice, a new spiritual life review intervention, is described. Research to deepen understanding of the R/S concerns of patients with brain cancer and their loved ones, and spiritual care interventions offered to them is recommended.

摘要

过去20年进行的研究表明,许多癌症患者在应对疾病时会涉及宗教和精神层面(R/S)。关于脑癌患者的研究较少,但也有类似的发现。本文简要概述了关于癌症患者R/S与应对的研究,然后总结了关于脑癌患者及其护理人员的R/S研究。讨论了以下主题:(I)R/S对脑癌患者及其护理人员的重要性,(II)脑癌患者及其护理人员在癌症病程中经历的特定R/S需求,(III)脑癌患者及其护理人员采用的R/S应对机制,以及(IV)医疗保健系统在医疗环境中对R/S需求的关注。随后是专业牧师对他们自己处理脑癌患者及其护理人员R/S问题的经历以及他们为他们提供的精神关怀的描述。介绍了一种新的精神生活回顾干预措施“倾听我的声音”。建议开展研究以加深对脑癌患者及其亲人的R/S问题以及为他们提供的精神关怀干预措施的理解。

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