Ginsburg Faye, Rapp Rayna
Department of Anthropology and Center for Disability Studies, New York University, New York, USA.
Reprod Biomed Soc Online. 2020 Jul 6;11:1-8. doi: 10.1016/j.rbms.2020.06.001. eCollection 2020 Nov.
How are we to understand the complexities of prenatal genetic testing across social and cultural worlds? Availability and uptake of this biotechnology is variable, deeply influenced not only by national frameworks but also by local regimes of value. We argue that these intersections of genetic testing and local cultural worlds must be understood as part of broader 'reproductive imaginaries', including everything from kinship, pregnancy and gender norms to children's links to specific community norms of national and cultural futures. In the USA, preconceptual/prenatal genetic testing is widely available, driven by a neoliberal market-based model of consumer choice. In contrast, such tests are far more restricted by bioethical laws and medical regulations in France. This article will examine how particular cultural and religious communities - primarily American orthodox Jewish communities - shape prenatal genetic testing in their own distinct ways.
我们该如何理解跨越社会和文化背景的产前基因检测的复杂性?这种生物技术的可及性和接受程度各不相同,不仅深受国家框架的影响,还受到地方价值体系的深刻影响。我们认为,基因检测与地方文化背景的这些交叉点必须被理解为更广泛的“生殖想象”的一部分,包括从亲属关系、怀孕和性别规范到儿童与国家和文化未来特定社区规范的联系等一切内容。在美国,孕前/产前基因检测在新自由主义的基于市场的消费者选择模式推动下广泛可得。相比之下,在法国,此类检测受到生物伦理法律和医疗法规的更多限制。本文将探讨特定的文化和宗教社区——主要是美国东正教犹太社区——如何以其独特的方式塑造产前基因检测。