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父母对其子女慢性病所导致的困境的态度。

Parents' attitudes towards a difficult situation resulting from the chronic disease of their child.

作者信息

Guz Ewa, Brodowicz-Król Magdalena, Kulbaka Ewa, Bartoszuk-Popko Magdalena, Lutomski Piotr

机构信息

University of Economics and Innovation, Department of Human Science, Lublin, Poland.

Faculty of Health Sciences, Department of Paediatric Nursing, Medical University, Lublin, Poland.

出版信息

Ann Agric Environ Med. 2020 Sep 11;27(3):476-480. doi: 10.26444/aaem/119085. Epub 2020 Mar 25.

Abstract

INTRODUCTION AND OBJECTIVE

The family is a reliable and permanent source of support for every human being. It is the key link in the welfare system. The aim of the study is to assess parents' attitudes towards the occurrence of a difficult situation resulting from a child's chronic illness.

MATERIAL AND METHODS

The study involved randomly selected parents of children with chronic diseases (N=107). The study was carried out at the Dental Clinic of the 'Little Prince' Children's Hospice in Lublin.

RESULTS

The study revealed that for parents a difficult life situation is mainly associated with the disability of a family member or a friend, whereas the action approach is the most frequently chosen attitude towards a child's chronic disease. In the examined group of parents, a significant correlation was observed between the age of the parents and the choice of a specific parental attitude towards the child's chronic disease (in terms of intellectual approach). However, no significant correlations were found between the parents' place of residence and the choice of a specific parental attitude towards the chronic disease of a child.

CONCLUSIONS

During the diagnosis of chronically ill children, parents should also be educated in this regard. Therapy and psychological help, as well as directing parents to relevant support groups, organizations or associations, will prove immensely valuable while coping with a difficult life situation.

摘要

引言与目的

家庭是每个人可靠且持久的支持来源。它是福利体系中的关键环节。本研究旨在评估父母对因孩子慢性病而产生的困难处境的态度。

材料与方法

该研究涉及随机选取的患有慢性病儿童的父母(N = 107)。研究在卢布林“小王子”儿童临终关怀医院牙科诊所进行。

结果

研究表明,对父母而言,艰难的生活状况主要与家庭成员或朋友的残疾有关,而行动方式是对孩子慢性病最常选择的态度。在被调查的父母群体中,观察到父母年龄与对孩子慢性病的特定父母态度选择(就理智方式而言)之间存在显著相关性。然而,未发现父母居住地与对孩子慢性病的特定父母态度选择之间存在显著相关性。

结论

在慢性病患儿的诊断过程中,也应对父母进行这方面的教育。治疗和心理帮助,以及引导父母加入相关支持团体、组织或协会,在应对艰难生活状况时将被证明具有巨大价值。

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