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通过纳入家庭和文化背景来提高成人自闭症研究的有效性和普遍性。

Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts.

作者信息

Long Kristin A, Gordillo Monica, Orsmond Gael I

机构信息

Department of Psychological & Brain Sciences and Boston University, Boston, Massachusetts, USA.

Department of Occupational Therapy, Boston University, Boston, Massachusetts, USA.

出版信息

Autism Adulthood. 2020 Sep 1;2(3):177-184. doi: 10.1089/aut.2019.0061. Epub 2020 Sep 3.

Abstract

The relatively nascent empirical knowledge base regarding autism in adulthood provides an opportunity to adopt a contextual approach that conceptualizes autism features, outcomes, and supportive services as interactions between the characteristics of the condition and contextual factors across the life course. Although a contextual approach encompasses many aspects of a person's identity and social ecology, we focus here on the closely interrelated family and cultural contexts, which have been poorly integrated into adult autism research. We argue that designing studies with attention to context (e.g., family and culture) will improve the relevance and comprehensiveness of findings, which in turn will improve construct validity and provide a more accurate understanding of autism-related outcomes in adulthood. Similarly, designing and/or selecting measures that have been validated with culturally and linguistically diverse samples will improve the utility of findings and reduce spurious or null effects. More contextually informed methodologies will lead to improved generalizability and practical applications of findings. We offer concrete guidance regarding how to increase the social ecological perspective within adult autism research as it relates to study conceptualization, methodology, and measurement.

摘要

关于成年期自闭症的相对新兴的实证知识库提供了一个机会,可采用一种情境方法,将自闭症特征、结果和支持性服务概念化为该病症特征与整个生命历程中的情境因素之间的相互作用。尽管情境方法涵盖了一个人身份和社会生态的许多方面,但我们在此关注密切相关的家庭和文化背景,而这些背景在成人自闭症研究中整合得很差。我们认为,在设计研究时关注情境(如家庭和文化)将提高研究结果的相关性和全面性,这反过来又将提高结构效度,并更准确地理解成年期与自闭症相关的结果。同样,设计和/或选择已在文化和语言多样的样本中得到验证的测量方法,将提高研究结果的实用性,并减少虚假或无效效应。更多基于情境的方法将提高研究结果的可推广性和实际应用价值。我们就如何在成人自闭症研究中增加社会生态视角提供具体指导,这涉及研究概念化、方法和测量。

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