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照料者转变研究:发病照料者和对照者社会参与度的变化。

Change in Social Engagement among Incident Caregivers and Controls: Findings from the Caregiving Transitions Study.

机构信息

Bloomberg School of Public Health, Johns Hopkins University, USA.

School of Public Health, University of Alabama at Birmingham, USA.

出版信息

J Aging Health. 2021 Jan;33(1-2):114-124. doi: 10.1177/0898264320961946. Epub 2020 Sep 23.

Abstract

We aimed to compare incident family caregivers and matched controls on change in social network variables and satisfaction with social activities. A total of 479 participants from the Caregiving Transitions Study were included in the analysis, 244 (50.9%) of whom began substantial and sustained caregiving between baseline and follow-up interviews. We assessed associations between incident caregiving and change in social network size, change in monthly social contact, and satisfaction with social activities. Incident caregivers reported lower satisfaction with social activities and greater decline in social network size than controls. Among only the caregivers, dementia caregivers reported greater decline in social network size while caregivers who were spouses, experienced higher strain, and provided more hours of care reported lower satisfaction with social activities. Social engagement declined more among incident caregivers than controls. Future studies should aim to understand why subgroups of caregivers reported lower social engagement.

摘要

我们旨在比较新发生的家庭照顾者和匹配的对照者在社会网络变量和对社会活动的满意度方面的变化。共有 479 名来自照顾者过渡研究的参与者参与了分析,其中 244 名(50.9%)在基线和随访访谈之间开始了大量和持续的照顾。我们评估了新发生的照顾与社会网络规模变化、每月社会接触变化和对社会活动的满意度之间的关联。新发生的照顾者报告的社会活动满意度较低,社会网络规模下降较大。仅在照顾者中,痴呆症照顾者报告的社会网络规模下降更大,而配偶照顾者、经历更高压力和提供更多小时照顾的照顾者报告的社会活动满意度较低。社会参与度在新发生的照顾者中下降幅度大于对照组。未来的研究应旨在了解为什么某些照顾者群体报告的社会参与度较低。

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